CONFIRMED MINUTS OF THE FIFE RESPIRATORY MCN STEERING GROUP THURSDAY 6TH FEBRUARY, AT 3PM, COMMON ROOM, EDUCATION CENTRE, QMH CHAIR : Colin Selby Present Dr Colin Selby Maureen Foster Dr David Chinn Lorna Stewart Lindsay Simmons CS MF DC LST LSM MCN Lead Clinician [Chair] Patient Representative /Rep of People Research & Development Coordinator District Nurse/Anticipatory Nurse Respiratory Nurse Specialist Apologies Elaine Carnegie David Somerville Gill Dennes Dr Tom Hartung Lorna MacKenzie June James Karen Gibb Claire Reilly Fiona Eastop Gayle White Lorna Stevenson Voluntary Sector GP Inverkeithing MCN Lead Clinician Acute Services Consultant Intermediate Care tam Manager GNEF Community Physio GNEF LTC Lead Smoking Cessation Deputy PC Development Pharmacist Physiotherapist Respiratory Co-ordinator Chest Heart & Stroke Scotland In Attendance Sharon Macdonald Secretary [Minutes] 1. 2. 3. 3.1 WELCOME & APOLOGIES CS welcomed everyone to the meeting; due to the low number of attendees and the amount of apologies received a brief discussion was held regarding the quorum of the group. The group agreed to go ahead with the meeting. Apologies were noted as above. MINUTES FROM PREVIOUS MEETING The draft minutes from the meeting held on the 19th December 2013 were previously circulated for comment and minor amendments were made. These were accepted as a true and accurate record. Role & Remit-March 2013 v3.0.doc UNCONFIRMED Minutes 191213.pdf MATTERS ARISING Home Oxygen Service CS advised that he is awaiting confirmation of a meeting with Neil Pryde, Evelyn McPhail and Brian Montgomery. 13/10/2014_V2 3.2 3.3 4. 4.1 4.2 Detect Cancer Early Keep Well staff now able to refer patients for chest x-ray in line with the Scottish National Lung Cancer indicators/parameters. Smoking Cessation staff are currently receiving training. National Respiratory Toolkit Renamed to My Lungs, My Life; development of the site continues and it is progressing well; however it is not yet ready for testing. Updates will continue to be provided to the group. The site will be live on line in January 2015. ASTHMA C&YP Asthma Sub Group Update Group last met 6th December (minutes not available);a discussion around the Chair of this group was held, CS asked for a volunteer as it was decided that it needs to be clinical staff member (with an interest in Asthma) within Fife. Discussed the need for a model of care for transition from children to adult services (perhaps along the lines for cystic fibrosis and diabetes) ISD Report [October-December 2013] Figures showing a number of “out-of area” patients attending Fife clinics 5. COPD CS advised that there will be a flood of new drugs in 2014/2015; FE will provide an update/feedback when available. 6. 6.1 BRONCHIECTASIS Action Plan Update CS advised that confirmation regarding the readability of the action plan had been received from Equality & Diversity; the plan was launch at the PLT session and is available on the Website. Dr Dhasma provided a Bronchiectasis Session at the PLT [5.2.14]; feedback from the session was very good. 7. PULMONARY REHABILITATION CS advised he was invited to a meeting (NHS redesign committee) which was attended by executive directors and non board members where part of the discussion focused on the year to year funding challenges of the service. CS feedback that high level management believe this service is “core funded” when, in fact, it is not. CS advised that he is awaiting further feedback from Ingrid Hale. 8. 8.1 Anne McKean CS EDUCATION PLT The dates for 2014/45 are; Thursday 10th April Tuesday 24th June Wednesday 24th September Thursday 6th November Tuesday 3rd February 13/10/2014_V2 CS asked for suggestions for potential respiratory sessions 1. Non-Malignant Palliative Care; Educational Needs 2. Detect Cancer Early 3. Asbestos Disease Awareness (mention made of a charity in Dundee which provides very good speakers) 9. 10. PATIENT SUB GROUP UPDATE MF advised that the group last met on Tuesday 4th February. CHSS update from Nicola Cotter advised that permanent funding has been received to make the helpline telephone number freephone. Members of the sub-group asked what the waiting time is from referral to attending the pulmonary rehab course; unfortunately Carol Smith was not in attendance to provide feedback. MF advised that at a workshop it was highlighted that 49/50 patients were not using there inhalers correctly; MF asked the group if there is a procedure that practice nurses have to follow when completing a patient’s annual review; LS advised that part of the criteria is inhaler technique. MF advised that the sub-group is reviewing their work plan and hope to present it in the next couple of months. MF advised that both Gill Dennes and Fiona Eastop will attend the group and give a presentation. MF advised that concerns had been expressed from members of the patient group over number of disabled parking bays at both the Queen Margaret and Victoria Hospitals. CS PHARMACY / PRESCRIBING FE had hoped to attend the meeting after she had attended the NAG; FE had provided an update in case she didn’t manage to make it back in time; Practices working on reviewing high dose ICS inhalers (either as pilot work for next year or as GMS project for this year) continues. No current supply/availability issues in primary care Anne McKean highlighted issues of determining compliance/concordance for patients, but difficulty if oversupply, which can occur if patients signed up to community pharmacy prescription re-order services, when either they are receiving supplies elsewhere (e.g. out-patient clinic), or not complying with medication. New asthma/COPD product launched by GSK, but awaiting SMC decision (COPD indication April, asthma indication June/July 2014). Formulary decision will not be made until SMC decision announced, however we should consider a review of formulary respiratory chapter very soon, in order to guide GPs/secondary care in its use and place amongst existing therapies. Difficulties as product contains a new molecule, but with a name similar to existing product molecule (not to be too technical). National respiratory guidance being discussed at NAG [06.02.14], so can feedback on outcome of meeting. 13/10/2014_V2 11. MCN WORK 11.1 Annual Work Plan Update CS asked for an update from Anne McKean regarding Item 4 Asthma (b) Review Paediatric detailed patient care pathway. 12. Anne McKean AOCB Practical Spirometry : an evening training session is being arranged for March 2014, further details to be provided by Gill Dennes. R&D Funding : DC advised that the deadline for the research bursary is 21st February; anyone requiring additional information to contact DC direct ([email protected]). MEETING SCHEDULE 2nd April 5th June 6th August 2nd October 3rd December 3pm 3pm 3pm 3pm 3pm Board Room, Hayfield Clinic Common Room, Education Centre Board Room, Hayfield Clinic Common Room, Education Centre Board Room, Hayfield Clinic Victoria Hospital, Kirkcaldy Queen Margaret Hospital, Dunfermline Victoria Hospital, Kirkcaldy Queen Margaret Hospital, Dunfermline Victoria Hospital, Kirkcaldy 13/10/2014_V2