> Daily Newsletter e H e a lt h f o r u m w e d n e s d a y 1 4 MAY 2 0 1 4 I SSUE 0 3 Give Health an e-Chance “Europe’s goal is to make systems patient-centred; the eHealth Forum addressed major issues and showed the way forward for healthcare reform, cross-border provision of health and care services, the value of innovation and the development of the eHealth market. The importance of e-services such as e-prescription, digital patient history and patient registries were extensively discussed in numerous sessions. Substantial progress was made as regards the Green Paper on mHealth and the guidelines for e-prescription systems. The Forum placed great emphasis on Silver Economy, as well as personalised and integrated care in Horizon 2020, ageing populations and chronic patients further to scaling up the activities of Action Groups and Reference Sites. The event was graced by the EU-US MoU on eHealth and the EU-US Business Marketplace and Cooperation Assembly in interoperability and workforce skills. Patient empowerment, synergies, the transformation of the traditional healthcare landscape and medical practice were also thoroughly discussed. In conclusion, it was made perfectly clear that Europe must move forward under a common vision and agenda, in a coordinated way, so as to improve citizens’ and patients’ quality of life through the use of eHealth solutions and other digital innovations as enablers of change.” C. Papanikolaou Hellenic Ministry of Health Hellenic Center for Disease Control & Prevention Greek Presidency of the EU Council - 1st Semester 2014 Horizon 2020 ec.europa.eu This project is co-funded by E.U. Horizon 2020 Research & Innovation Programme www.ehealth2014.org CONTENTS 02 ePrescription for Patient Safety, efficiency and continuity of care 03 4TH EU-US eHealth Marketplace & 2014 Transatlantic Health IT & Evidence and decision making when going beyond pilots 04 Clinical Governance: the use of e-tools and CDA documents & epSOS Industry Team and Open Source Community workshop 05 Ageing Well Network 06 Secrets of Telehealth 07 Leading Service Innovation in Health & Care - EHTEL Event & Patient access to health data in Europe 08 Photo Gallery: eHealth Official Dinner by the Sea e H e a lt h f o r u m w e d n e s d a y 1 4 MAY 2 0 1 4 I SSUE 0 3 ePrescription for Patient Safety, efficiency and continuity of care A s interoperability of ePrescriptions is an important enabler for the continuity of care in cross-border situations, there are several fully deployed national ePrescription systems in Europe today and many towards their deployment. There are also cross-border services already in place to serve specific objectives of neighbouring Member States/regions. However, challenges still remain to be addressed, particularly in terms of unique identification of pharmaceutical products that will improve safety and combat fraud. The interactive session, with the participation of Christos Halaris, Kyriakos Souliotis, Vasiliki Mantzana, Jesus Maria Macias, Päivi Hämäläinen explored the needs, practices and responses to challenges. The role of ePrescription in the improvement in safety and efficiency of care was explored by Konstanty Radziwill, Jamie Wilkinson, Jose Luis Cobos and Matyas Lakatos, General Manager, Amgen, Greece & Cyprus, who spoke of the “Informed outcome and decision making through e-Prescribing”. Panagiotis Telonis and Richard Torbett presented the regulatory aspects and the industry perspective in information sharing. National strategies for the deployment of ePrescription were presented by Brigitte Drewes, Loredana Luzzi, Tatjana Prendja-Trupec and Nicolas Luc. The subjects addressed included the presentation of national (Greece) regional (Spain), and cross border (FI, SE) implementation examples; reflections by health professionals on issues and challenges to be addressed (doctors, pharmacists, nurses); reflections by the Regulators and the Pharma Industry on unique identification and e-verification of medicines (EMA, EFPIA); as well as comments on the above with a view to todays’ and emerging national strategies. On eHealth Forum 2014 website (ehealth2014.org), see a detailed pres- entation of the Spanish ePrescription system which is based on the SNOWMED-CT (Systematized Nomenclature of Medicine - Clinical Terms) terminology. Spotlight on eHealth in Nursing Mr José Luis Cobos Serrano, representing the Spanish General Council of Nursing, presented the “e-cuidados” (e-care) project which constitutes a unique platform (software) for the management of good nursing practices. The Spanish General Council of Nursing is the regulatory body of the nursing profession in Spain where there are currently 250,000 registered nurses. This body participates on the prescription of medicines and medical devices in Spain, in virtue of the Medicines Law of 2009, and for that purpose the “e-cuidados” tool has been set up. The platform is based on the principles of safety, confidentiality and traceability, which allows nurses’ actions to be recorded at all times and can be integrated into other systems, making it very interoperable. The nursing language and methodology has been incorporated in order to promote standardisation of nursing care and thus unify operating criteria in both primary care and specialised care. Moreover, in the field of drug prescription we could prevent up to 80% of iatrogenic or adverse effects. The Spanish General Council of Nurses has trained 120,000 nurses in this platform. www.ehealth2014.org >p2 e H e a lt h f o r u m w e d n e s d a y 1 4 MAY 2 0 1 4 I SSUE 0 3 4TH EU-US eHEALTH MARKETPLACE & 2014 TRANSATLANTIC HEALTH IT eHEALTH COOPERATION ASSEMBLY - ECONOMIC OPPORTUNITIES CREATED BY EU-US COOPERATION ON eHEALTH / HEALTH IT T he bilateral relationship between the European Union and the United States in the eHealth/Health IT sector has many dimensions--economic, social, political and commercial. All of these areas present excellent opportunities for companies, universities, non-profit organizations and governments to work together on a variety of possible projects. What are some of the considerations for making decisions on which of these opportunities to pursue and exploit? This panel, with representatives from government, industry and a trade association, discussed some of these considerations, and how collaboration between these stakeholder groups can advance these objectives. Brian O’Connor, European Connected Health Alliance presented the leading efforts to bring together stakeholders to form local/regional eHealth ecosystems in Europe. From the government point of view, Mr Andrew McCormick, Permanent Secretary at the Department of Health, Social Services and Public Safety of Northern Ireland analysed a key stakeholder’s role in helping with deployment of eHealth, while, Mr Octavian Weiser, representing a large, multinational company with strong healthcare and eHealth business internationally, showed the industry’s perspective. The discussion modulated, on behalf of the U.S. Department of Commerce, Mr Matthew Hein, eHealth industry analyst with a view to help U.S. companies increase their exports. [Evidence and decision making when going beyond pilots] >We learn from the past by looking towards the future, according to this session. Some of those forward-looking visions are provided by several large-scale initiatives that have been launched with the financial support of the European Commission. Their aim is to deploy innovative telemedicine services and integrated care services, both in real life and in a large diversity of European regions. Three initiatives were introduced in this session, the objectives of which are: to provide evidence of clinical effectiveness and quality of life improvement emerging from specific interventions in different settings; and to assess economic and organisational outcomes. The experience of Renewing Health demonstrates that some evidence can be provided through an approach that uses Randomized Controlled Trials. However, to better assess the economic and organisational impacts of an intervention, a real-life based approach is needed. This is one of the lessons that both United4health and Smart Care have learned, and are applying. Smart Care adds a social care dimension to that of health care. www.ehealth2014.org >p3 e H e a lt h f o r u m t u e s d a y 1 3 MAY 2 0 1 4 I SSUE 0 2 Clinical T Governance the use of e-tools and CDA documents Joint Event of the eHealth Forum 2014 & 40th Panhellenic Medical Congress his joint event organized by Athens Medical Society and HL7 Hellas aimed at bridging differences between the healthcare professional and eHealth Communities by promoting the created added value of new standard based eservices for clinical governance. The event is split into two sessions one being integrated as a parallel event within the eHealth Forum 2014 and the other within the 40th Panhellenic Medical Congress. This event addresses issues such as clinical governance, cross border healthcare, health care records and patient summary applications, reuse of standards and best practices of HL7 CDA use for clinical governance. Today, at the session “Clinical Governance: the use of e-tools and CDA documents”, with the presence of Dr. Clemens Auer, Secretary General, Federal Ministry of Health, Austria and Lefteris Thireos SG AMS & HL7 Hellas as chairs, the experience from Kaiser Permanente organism and the e-prescription in Greece was shared by Jamie Ferguson, VP Health IT Strategy & Policy, Kaiser Permanente and Dr Haralampos Karanikas, Dr Lefteris Thireos respectively. The Chief Technology Officer, Health Level 7 International, John Quinn, spoke on “The emerging role of eHealth standards and standards development in global economy”, while Ch. Xanthopoulakis PDEng, Senior Software Designer, Philips Research presented the application of HL7 CDA Personal Health Monitoring Reports in “Interconnecting Patient Home Telehealth and the United Kingdom NHS”. The last part of this event was dedicated to the presentation of the perspective and role of HL7 Affiliates regarding Patient Summaries and CDA, by representatives from HL7 Italy, Croatia, Romania, UK and Greece. On Thursday, May 15, the second part of the eHealth Forum 2014 – 40th Panhellenic Medical Congress joint event will take place at the Athens Hilton Hotel (Terpsihori B, 19:30-21:30) were the Greek case of Integrated Management of clinical Guidelines with the support of IT Tools will be discussed. Representatives of the public sector, such as the Greek Ministry of Health and IDIKA, as well as the private (Intrasoft International) and HL7 will participate in this event. epSOS [Industry Team and Open Source Community workshop] A t the first part of this workshop, Miroslav Koncar (Oracle) presented an overview of epSOS organization and architecture offering basic knowledge about what epSOS is, which problems it solves and what the results have been. In 2008 the European Commission started a large scale pilot to not only design but also test on a large scale the cross-border communication of patient information. As a result, the pilot has yielded a set of services that benefits all European patients who seek healthcare abroad - hence the name, Smart Open Services for European Patients (epSOS). In his presentation, Miroslav Koncar covered the basic setup of epSOS in terms of organization, architecture, specification and implementation. He also talked about the crucial role of industry in shaping this project, as well as the benefits and drawback of open source software. The epSOS semantic Interoperability paradigm was presented by Jacob Boye Hansen (CareCom) to show how epSOS has facilitated true semantic interoperability between all European member states; how epSOS created an intermediate ‘language’; how translation and transcoding was made and how the ever evolving coding systems are kept in sync. The epSOS large scale pilot has yielded a viable infrastructure on both organizational, legal, technical as well as the semantic level. The latter aspect proves to be one of the most challenging in this project - how to enable health professionals to provide care to foreign patients by overcoming the language barrier.> www.ehealth2014.org >p4 e H e a lt h f o r u m w e d n e s d a y 1 4 MAY 2 0 1 4 I SSUE 0 3 >epSOS has provided an ingenious and creative solution to make sure each nation participating in this project can take ownership of the translation and transcoding of medical coding systems. One of the major achievements of the epSOS project was bringing people together around a common need - cross border healthcare. People from several countries and diverse education and experience background, played the privileged game of designing a possible future. Regarding technical interoperability, those people organized as an open community called OpenNCP Community which the vision is: “design and develop a set of Open Source Components (OpenNCP) that can be adopted by Participating Nation, to build their local implementation of the epSOS NCP.” In his talk, Licínio Mano (Portuguese Ministry of Health, SHARED Services) provided a glimpse about best practices, achievements and challenges ahead for the OpenNPC Community. epSOS has produced a number of common components for building National Contact Points (NCPs) used in cross-border health services. The components culminate in an open source ready-to-deploy NCP implementation, OpenNCP. Konstantin Hyppönen representing Kela (The Social Insurance Institution of Finland) and Marcelo Fonseca (iUZ, Portugal) provided insights into the architecture of OpenNCP, covering questions about the technical design behind the epSOS services. The use and implementation of IHE profiles, semantic components, end-user portals, and security services were described in a techy but intelligible way. Also, some insights about the used development tools, the integration and testing strategies were presented. First-hand experiences of using OpenNCP in a nation-wide setup were shared, followed by an open discussion on epSOS. The workshop chaired Juergen Wehnert, Gematik mbH (Germany) and Dr. Alexander Berler, Industry Team Steering Committee (Greece). ageing well network ICT Solutions for Independent Living In Own Home T he AgeingWell Network parallel session focused on the need of interaction in collaboration of developers, service providers, public authorities and end users in the development and adoption of ICT / mHealth solutions for independent living for the growing elderly population of Europe. Market potential, interoperability, cost effectiveness and sustainability of solutions are key drivers in the development of solutions, while putting the client in the epicenter of the design, implementation and evaluation of ICT solutions is of paramount importance. A number of solutions focusing on accessibility, health prevention, quality of life, follow up and continuous care was presented. Key barriers to the adoption of technologies were discussed such as interoperability, the effective and pragmatic implementation in times of a financial crisis, the scaling up of solutions and increased fragmentation of the market. These eventually lead to limited investment and slow adoption. It was www.ehealth2014.org noted that the nature of the market is such that currently the adoption of ICT /mHealth solutions from the individual customer is not very effective because of the need for significant infrastructure, development of clinical tests of large scale, cost effectiveness and trust to the selected health care providers. At the second part of the session the end users (municipalities, health care providers and senior citizens associations) presented their perspective. Key points were the need to improve seniors’ involvement in the development of ICT solutions and intergenerational communication. It is important to facilitate learning interest by talking and informing, investigating, listening and encouraging seniors; also creating accessible, secure and user-friendly environments; and finally consulting experts such as gerontologists, etc. For more information about the AgeingWell Network please visit the website: http://ict-ageingwell.net >p5 e H e a lt h f o r u m w e d n e s d a y 1 4 MAY 2 0 1 4 I SSUE 0 3 The Secrets of Telehealth how to deploy services in routine care F or decades, telemedicine and telehealth projects have been receiving a lot of attention from innovative healthcare professionals. However, only a few projects have successfully shifted from lab to routine care. Even fewer have gone from small- to large-scale deployment. Lack of clinical evidence, user adoption, reimbursement and business models have often been identified as the main explanations for this situation. An element that has been much less studied is the lack of deployment method. Unquestionably, this is also a pitfall. Several organisations and key players in telemedicine across Europe have decided to join forces. They have launched the Momentum project to work on how to deploy telemedicine, by analysing those initiatives which have been successfully deployed and identifying the reasons why they were successful. The project is funded under the ICT Policy Support Pro- gramme (ICT PSP) as part of the Competitiveness and Innovation Framework Programme of the European Commission. This session was the first opportunity to access the initial results of the project, a list of 18 critical success factors that cover overall context (i.e. cultural readiness and financing); management aspects (the need for leadership, for a business plan, for change management); legal and security issues (including liability or the regulatory environment for data management); and technology considerations (including interoperability). They are collected in a short document with annotations available at http://telemedicinemomentum.eu/18-factors. These factors require further validation, and the publication of this list begins a public consultation phase. Indeed, according to the first of this session’s speakers, Marc Lange, Secretary General of EHTEL and coordinator of the Momentum project, “Telemedicine in Europe suffers from ‘pilotitis’, a glut of technology experiments that have received start-up subsidies from public or commercial sources to get them off the ground, but which cease to exist once the subsidy is withdrawn. Our success factors will help the ‘doers’ move their projects into routine care and scale them up to provide real benefits to patients in Europe.” Rachelle Kaye, AIM & Maccabi Healthcare Services (Israel) and Peeter Ross, eTervis (Estonia) followed with presentations on the managing aspects of telemedicine deployment, while Ellen K. Christiansen, Norwegian Centre for Telemedicine (NST) analysed the legal, regulatory and security issues, Tino Marti, TicSalut (Spain) presented the ICT perspective. Finally, Dr. Steffen Sonntag, Gesellschaft für Patientenhilfe DGP mbH, Munich, Germany presented the case of the “German society for patients assistance” (DGP). eHealth Forum 2014 was a success! More than 1,278 participants from 38 countries and 150 speakers from around the globe joined the eHealth Forum 2014 in Athens. In total, 70 exhibitors participated from Europe and US. Seventeen exhibitors was part of the US Pavillion, 4 Local Government, 4 Government Institutions, and 13 Start-Up companies. www.ehealth2014.org >p6 e H e a lt h f o r u m w e d n e s d a y 1 4 MAY 2 0 1 4 I SSUE 0 3 [Patient access to health data in Europe] Leading service innovation in health and care O n the evening of 13 May 2014, at the Royal Olympic Hotel, a stimulating Thought Leadership debate facilitated by EHTEL with the support of IBM and NHS24 (Scotland) attracted over 110 leaders in European health, care and technology. Under the beautiful Athenian sky, an hour-long discussion was animated by Professor George Crooks, EHTEL President and Medical Director, NHS24, Scotland. The evening was rounded off by conversations held over a pleasant Greek dinner. Making sense of numbers is an important challenge. At this evening, statistics began to tell a meaningful story. The message was the need for a reform in health and social care that can result from a more extensive use of technology. Through the figures quoted, the expert attendees began to formulate new ideas for the future. Fighting chronic conditions - chief among them diabetes and its potentially debilitating results - was often the lens through which the organisational and technological challenges lying ahead were seen throughout the evening. Among the evening’s memorable quotes: “A revolution is needed in 21st century healthcare,” and “we should focus on where we need to be tomorrow, which is leading edge.” Alex Neill, Scottish Cabinet Secretary for Health and Wellbeing “In a period of severe financial and social crisis, technology can be a bonus for organisational reform.” Theodore Vontetsianos, Sotiria General Chest Diseases Hospital of Athens “As a person with diabetes, you may spend close to 8,736 hours a year by yourself, dealing with your diabetes. Why not use technology to bridge that gap?” Petra Wilson, General Secretary, International Diabetes Foundation “Innovation companies, such as IBM, now have 300,000 people around the globe working on health and medical care.” John Crawford, IBM “By 2021, the region of Southern Denmark’s university hospital will have far fewer than its current 7,000 beds. How can this be done persuasively and easily? A living lab is a good part of the answer.” Christina Wanscher, Health Innovation Centre of Southern Denmark >The SUSTAINS project is pleased to announce its joint working with the eHealth Governance Initiative in the preparation of a Briefing Paper which was launched this week to, and accepted by, the eHealth Network. This Paper made recommendations regarding patient health records and, notably, patient access to health data. The paper recommended that access to patient data should be about making health data meaningful and understandable. It is about moving patient access from the paper based to the digital world and about generating the added value that comes about with integrated health information portals. Creating convergence at the national level can also enhance and support access to patient data across borders or despite borders. In addition to its co-operation with the Briefing Paper, the SUSTAINS Project, sponsored by the European Commission, is recording success in its work to provide patients with access to their personal health records and other online services. Eleven Regions from across the European Union are participating in a joint learning initiative as they introduce patient access to various services within various Member States. The aim is to investigate different approaches to implementing such services and to identify lessons learned for other healthcare organizations seeking to undertake such work in the future. Driving the work is the recognition that as people live longer, chronic diseases become more prevalent and medications and treatments more expensive, radical solutions will be required to ensure that future healthcare delivery is sustainable. By putting the patient more closely in touch with the management of their own healthcare, the aim is to improve awareness and engagement leading to more effective and efficient healthcare delivery including healthier lifestyles. The work of SUSTAINS supports the objectives of the EU Digital Agenda 2020 specifically Action 75 of the eHealth Action Plan namely to “give Europeans secure online access to their medical health data and achieve widespread telemedicine deployment” by 2015. A recent internal evaluation of SUSTAINS work revealed significant success in the implementation of a number of key clinical and administrative services across all of the pilot sites. The project was described in a presentation by Dr Stephan Schug, Chief Medical Officer of EHTEL, as part of the Speakers Corner within the eHealth Forum on Wednesday 14 May. www.sustainsproject.eu www.ehealth2014.org >p7 e H e a lt h f o r u m w e d n e s d a y 1 4 MAY 2 0 1 4 I SSUE 0 3 ehealth official dinner by the sea www.ehealth2014.org >p8 e H e a lt h f o r u m w e d n e s d a y 1 4 MAY 2 0 1 4 I SSUE 0 3 gold sponsors Silver sponsors Supporters Exhibitors p c c h e l l a s P a t i e n t s’ A d h e r e n c e congress organiser www.ehealth2014.org >p9
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