(Rheumatology) Quality Dashboard

Paediatric Medicine (Rheumatology) Quality Dashboard
Measure
Number
PRH01
PRH02
PRH03
PRH04
PRH05
Domain
Measure
Domain 4:
Ensuring that
people have a
positive
experience of
care
Patient education
Domain 4:
Ensuring that
people have a
positive
experience of
care
Domain 4:
Ensuring that
people have a
positive
experience of
care
Domain 4:
Ensuring that
people have a
positive
experience of
care
Domain 4:
Ensuring that
people have a
positive
experience of
care
Specialist care
Description & Provenance
Children with established rheumatic
diseases (and their carers) should be
counselled by a Paediatric
Rheumatology Clinical Nurse Specialist*
before starting treatment with a DMARD
or Biologic.
Children with Juvenile Idiopathic
Arthritis (JIA) should have access to a
dedicated paed rheum clinic* for all
follow-up appointments
Name of KPI
Proportion of
children who started
with a DMARD or
Biologic agent
counselled by a
paediatric CNS
Numerator
Denominator
Period Type
No. of children counselled by a paediatric No. of children of any age Quarterly
Clinical Nurse Specialist (or other
who started treatment with
designated member of the MDT) before a DMARD or Biologic agent
starting treatment with a DMARD or
Biologic agent
Frequency
Data Source
Numerator
Data Source
Denominator
Quarterly
Local Trust
Data
Local Trust
Data
Proportion of
No. of all rheumatology appointments for
patients with JIA seen children with JIA seen in a dedicated
at dedicated
paediatric rheumatology clinic
paediatric
rheumatology clinic
Total number of
rheumatology
appointments for children
with JIA in outpatients
Quarterly
Quarterly
Local Trust
Data
Local Trust
Data
Access to Specialist Children with Juvenile Idiopathic
care
Arthritis should have access to a
specialist paediatric rheumatology
service from new diagnosis
Mean time for
children with JIA to
appointment in a
specialist paediatric
rheumatology
For children with newly-diagnosed JIA,
total number of days to have a booked
appointment in a specialist paediatric
rheumatology service
Total number of children
with newly-diagnosed JIA.
Quarterly
Quarterly
Local Trust
Data
Local Trust
Data
Access to specialist Children with Juvenile Idiopathic
treatments
Arthritis who need to have intraarticular steroid injections should wait
no longer than 4 weeks, and have them
done on a Paediatric General
Anaesthetic list.
Access to specialist Children with Juvenile Idiopathic
care
Arthritis should have access to Uveitis
screening within 6 weeks of diagnosis
Mean number of days
to dedicated
Paediatric GA list
from date of decision
to treat
For children with JIA who receive IntraArticular steroid injections, mean number
of days to dedicated Paediatric GA list
from decision to treat
No. of children with JIA
Quarterly
who receive Intra-Articular
steroid injections under
General Anaesthesia
Quarterly
Local Trust
Data
Local Trust
Data
Mean time to booked
appointment to start
Uveitis screening
with an appropriate
paediatric opthalmic
specialist
For children with newly-diagnosed JIA,
No. of children with newly- Quarterly
mean time to a booked appointment to
diagnosed JIA
start uveitis screening with an appropriate
peadiatric opthalmic specialist.
Quarterly
Local Trust
Data
Local Trust
Data
Data
presentation
Target
Interpretation
Guidance
Notes_01
* As an interim measure for no
more than 18months, counselling
may be done by a designated
Paediatric Nurse working under
the direct supervision of a
Paediatric Rheumatology Nurse
Specialist within the network
* A dedicated paed rheum clinic
includes access to a full MDT as
defined by BSPAR
Applies to referrals received by
fax, email, or letter (not
telephone)
Notes_02
DMARDS ¬ Methotrexate,
Leflunamide, Sulphasalazine,
Hydroxychloroquine
• Data returned by Hubs for entire
networks (network position
calculcated by totalling relevant
hubs data)
Biologics - Etanercept,
Adalimumab, Infliximab, Anakinra,
Tocilizumab, Abatacept, Rituximab

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