Gynae NSSG Leads / “NCIN Gynae Clinical Leads Group” The St

FINAL PROGRAMME & MEETING NOTES
Gynae NSSG Leads /
“NCIN Gynae Clinical Leads Group”
The St Giles Hotel
Bedford Avenue, London Wc1B 3GH
Friday January 31, 2014 9.30AM – 3.30PM
*** PRESENTATIONS IN ITALICS TO BE POSTED AS PDF
FILES ON BGCS WEBSITE FOLLOWING THE MEETING ***
Welcome & Introduction
o Andy Nordin
INVITED SPEAKERS SESSION
o ORCA collaboration: gynae cancer audit proposal
o Jan van der Meulen, London School Hygiene & Tropical Medicine
o Ultra-Radical Debulking Surgery in Advanced Ovarian Cancer:
Proposals for a national registration data base
o Andy Nordin / Phil Rolland
•
Andy reported plans for a NICE audit/data base administered by
Brunel University, & Phil updates on plans for a BGCS data set.
Negotiations ongoing and will hopefully achieve a coordinated
project linked to COSD data collection.
o BGCS Commissioning Subgroup
o Andy Nordin
o Tariffs & Profitability of Gynae Oncology Services
o Rob Gornall
FIVE MINUTE UPDATES SESSION
o SHAPE trial: simple vs radical hysterectomy in early stage cervical cancer
o John Tidy
•
John updated the group on the SHAPE trial to assess simple hysterectomy and
lymphadenectomy vs radical hysterectomy for early stage cervical cancer.
o Update on Gynae Patient Reported Outcome Measure (PROM) project
o Nick Wood / Andy Nordin
• Nick & Andy updated the group on the Gynae Cancer PROMS pilot, which will
send a generic gynae cancer PROM to 1250 cervical, uterine and ovarian cancer
patients, with funding from NHS England.
o Update on NICE Review of IOG – low risk endometrial cancers
o Andy Nordin
•
Andy reported that there does not appear to have been any further
developments from NICE on the low risk endometrial cancer review.
o 2013 FIGO Staging system: ovarian, tubal & peritoneal cancers
o Andy Nordin
•
Andy reminded the group of the FIGO(2013) staging system for ovarian, tubal
and peritoneal cancers that were implemented in the UK on 1 January 2014
o BGCS Guidelines Committee endometrial cancer guidelines
o Sudha Sundar
•
Sudha reported on progress with the endometrial cancer guidelines., which
should be ready for publication shortly. Ovarian and vulval guidelines will
then be developed, with collaboration with the BGCS guidelines group
o Cervix Cancer imaging guidelines
o Ken Lim
•
The group confirmed RCOG guidelines for routine use of PET scans in
cervical cancer
o Peer Review update
o Sue Knights for James Heasman
o BGCS update
o Phillip Rolland for Raj Naik
Gynae Oncology Surgical Group update
o Stephen Dobbs
o BGCS Training Subcommittee & Subspecialty Training update
o Andy Nordin for Raj Naik
o National Forum of Gynae Oncology Nurses update
o Tracie Miles
•
Tracie updated the group on the activities of the NFGON
Routine BRACA testing for ovarian cancer
o Andy Nordin for Jonathan Lederman / Tim Mould
•
Andy reported on discussions to introduce routine BRCA testing for all
women with serous & endometrioid ovarian cancers. 17% of these
patients are positive, and their disease is more likely to be sensitive to
PARP inhibitors which will become available shortly.
o Analgesia for outpatient hysteroscopy
o Andy Nordin & Debbie Vince (user representative)
•
Andy introduced Debbie, who is the new uterine cancer user
representative on the NCIN SSCRG and BGCS commissioning groups.
Debbie presented an argument for analgesia information and choice for
women undergoing hysteroscopy and endometrial biopsy
On call arrangements for gynae cancer centres
o Andy Nordin
•
Andy discussed a local proposal to withdraw a formal gynae oncology oncall rota. A show of hands illustrated that the vast majority of centres
have a formal rota of gynaecological oncologists on call at least to cover
theatre nights. It was agreed that commissioning specifications should
require robust on-call and emergency arrangements for patient care.
MEET THE CHARITES SESSION
o OVACOME
o “Be Clear On Cancer” campaign
o Patient Experience Survey ovarian cancer data
o Louise Bayne, CEO, OVACOME
NCIN SESSION
o Systemic Anti-Cancer Dataset & Radiotherapy Dataset
o Kellie Peters, Clinical Outcomes Programme, NCIN
o Update of NCIN Gynae Clinical Reference Group work programme &
publications
o 2013/14 Work Programme
o Jason Poole, Head of Cancer Intelligence, PHE Knowledge & Intelligence
o Short Term Ovarian Mortality: Case-Mix Results
o Carolynn Gildea, Principal Cancer Intelligence Analyst
•
Carolynn presented the extended analysis of short term ovarian cancer
mortality, which is being prepared for a NCIN publication.
o Service Profiles
o Sue Knights, NCIN
o Provisional Analysis of Radiotherapy Data in Gynae Oncology
o Rebecca Elleray, Senior Cancer Intelligence Analyst, East Midlands KIT
•
Rebecca presented work on the early analysis of radiotherapy data for
gynaecological cancers. Further work with the NCIN SSCRG clinicians to
interpret the data will be performed for a NCIN publication.
CLOSING SESSION
o Agenda items for next meeting
o Cancer Services and NHS Reforms
Sean Duffy, National Cancer Director
confirmed speaker
o Date of Next Meeting
FRIDAY DECEMBER 5, 2014
LONDON (venue TBC)

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