DON’T MISS THIS VALUABLE LEARNING EXPERIENCE ANNUAL CONFERENCE OCTOBER 22-24, 2014 BECOME A MEMBER! The Pediatric Complex Care Association welcomes new members to join us in our endeavor to better serve children with complex medical needs. We offer Active memberships, Affiliate memberships and Corporate/Foundation memberships. Learn more at PediatricComplexCare.org » Learn Best Practices and Innovations » Network With Knowledgeable Professionals » Take Home New Resources The vision of the Pediatric Complex Care Association is uniting organizations to provide a combined voice for children with complex medical needs. We are a national, non-profit organization whose mission is to create opportunities for professionals to advocate, educate, network, research and promote excellence in providing a continuum of care for children with complex medical needs and their families. The Pediatric Complex Care Association endorses cost-effective, sustainable care for the pediatric complex care population in an era of health care reform. Our research is used to develop benchmarks, quality indicators and evidence-based standards of care. By delivering educational and networking opportunities, we are able to provide peer-to-peer support, as well as promote partnerships, collaboration and communication among disciplines in the broad field of pediatric complex care. We are proud to represent the needs of professionals and the children they serve before government and regulatory agencies, professional societies and the public. CONFERENCE SCHEDULE For each breakout session, tracks are listed in this order: a. CLINICaL TRaCK B. aDMINISTRaTIVE/SOCIaL SERVICES TRaCK C. REHaB/EDuCaTION TRaCK WEDNESDaY, OCTOBER 22, 2014 12:30-3:00PM Member Round Table Lunch (invitation only) 6:00-6:30PM Registration 3:00-3:30PM Registration 6:30-7:30PM 3:30-6:00PM Tours of Helen M. Bernardy Center for Medically Fragile Children - Rady Children’s Hospital Opening Reception: Embassy Suites San Diego – Downtown (includes transportation time) THuRSDaY, OCTOBER 23, 2014 FRIDaY, OCTOBER 24, 2014 7:00aM Breakfast, Registration & Exhibits 7:00aM Breakfast, Registration & Exhibits 8:00aM Welcome & Introductions 8:15aM Welcome & announcements 8:15aM KEYNOTE: Life in the Espresso Lane 8:30aM PLENaRY: Children with Medical Complexity and Healthcare Reform Laurie Guest, CSP, Solutions are Brewing 9:15aM Break with Exhibits 9:30aM PLENaRY: The Joys of Social Work - Challenges of Working with Families Rishi Agrawal, MD, MPH, Lurie Children’s Hospital, IL 10:00aM Break with Exhibits 10:15aM Breakout Session #4 » 60 Minutes Panel facilitated by Holly Jarek, RN, MS, NHA, Seven Hills Pediatric Center, MA a. antimicrobial Stewardship in Pediatric Long Term Care Facilities Natalie Neu, MD, MPH, Columbia University Medical Center 11:00aM Break with Poster Presenters B. Role of the Director of admissions in a Pediatric Nursing Facility 11:30aM Breakout Session #1 » 60 minutes a. Peritoneal Dialysis in a Pediatric Facility Jennifer Amadon, RN, MSN and Holly Jarek, RN, MS, NHA, Seven Hills Pediatric Center, MA Nicole Campagna, RN, BSN and Crystal Hart, RN, BSN, Exceptional Care for Children, DE C. applying Sensory Strategies for Children Who Do Not Fit the SI Model B. Influential Communication Laurie Guest CSP, Solutions are Brewing C. “We” vs. “I” approach to Transitions Between Oral and Enteral Nutrition Support: How To Make It Happen Kimberly A. Donner, MA, CCC-SLP and Sarah Vermilyea, MS, RD, CSP, LD, CNSC, ChildServe, IA Ryan Whitney, MA, MS, OTR/L, New England Pediatric Care, MA 11:15aM Break with Exhibits 11:30aM Breakout Session #5 » 60 Minutes a. Decreasing Mechanical Ventilator Support in Medically Fragile Children 12:30PM Lunch & Exhibits 1:30PM Heather Huxol, MD and Swetha Suresh, MD, University of Louisville School of Medicine, KY Breakout Session #2 » 90 Minutes a. Development & Testing of the Nursing-Kids Intensity of Care Survey (N-KICS) B. Can you hear me now? Navigating Challenges of Social Media in Healthcare Ann-Margaret Navarra, PhD, CPNP-PC, NYU College of Nursing, NY Patricia Anderson, RN, MS, CRRN, Children’s Hospital of Richmond at VCU, VA B. Culture Change: Shattering Workplace Negativity and Rebuilding it with Positive Tactful Bricks and Mortar Mark J. Hargrafen, MCJ, RN, ChildServe, IA C. Physiatric approach to Tone Management Andrew J. Skalsky, MD, Rady Children’s Hospital, CA 3:00PM Break with Exhibits 3:15PM Breakout Session #3 » 60 Minutes C. autism Spectrum Disorders in the Complex Care Setting Yvette Janvier, MD, Children’s Specialized Hospital, NJ 12:30PM Lunch, Exhibits & Business Meeting – aLL aRE INVITED 1:30PM a. Designing and Implementing a Comprehensive Team approach to Skin and Wound Care Kathy Anduze, RD, Jennifer Battle, FNP, Myra Baltazar, PT and Anna Szopa, RN, Sunshine Children’s Home and Rehab Center, NY a. Effect of Infection Control Policy on acute Respiratory Illnesses in Pediatric Long Term Care B. advocacy 101 for your Facilities and Families Bevin Cohen, MPH and Meghan Murray, MPH, Columbia University School of Nursing, NY Panel facilitated by Pamela Dixon, NHA, MBA, Helen M. Bernardy Center for Medically Fragile Children, CA B. Creating a Leadership Succession & Development Plan C. Pediatric Traumatic Brain Injury Michael Rench, MDiv & Rebecca Watson, St. Joseph Home, OH C. From Light Stands to Sensory Rooms: Developing a Multi-Sensory Environment Lauren Waite, Ed.M, CTRS, CCLS, Voorhees Pediatric Facility, NJ 4:15PM adjourn TO REgisTER ONliNE, visiT PediatricComplexCare.org Breakout Session #6 » 90 Minutes Kathleen A. Munroe, MS, CCC-SLP, CBIS, Rady Children’s Hospital, CA 3:00PM Break 3:15PM PLENaRY: It’s Kinda’ Fun to do the Impossible Tracie Martin, RN, MSN and Annette Moore, NHA, Exceptional Care for Children, DE 4:15PM Closing Comments 4:30PM adjourn GENERAL INFORMATION REGISTRaTION Registration fee includes course syllabus, breakfast and lunch. TaRGET auDIENCE The conference brings together providers of care for children with complex medical needs which may include Physicians, Nurses & Nurse Practitioners, Pediatric Nursing Home Administrators, Occupational, Physical & Recreation Therapists, Social Workers, Speech Pathologists and Special Educators. aCCREDITaTION & CREDIT DESIGNaTION Nursing CEU & NHA credits pending. Please visit website for latest information. Due to ACCME March 2014 policy changes, this conference will not be able to offer CMEs this year. aCCOMMODaTIONS A block of rooms on 10/22 & 10/23 has been reserved at the Embassy Suites San Diego Bay - Downtown at a special rate of $155 per night for a single or double. This is a resort area, and we encourage early reservations. Embassy Suites San Diego Bay - Downtown 601 Pacific Highway San Diego, CA 92101-5914 Toll Free Reservations: 1-800-EMBASSY Group Code: Pediatric Complex Care Association Group Rate Expires 9/28/14 or based on availability by Embassy. CaNCELLaTION POLICY Conference cancellations must be received in writing by October 1, 2014, to receive a refund. No refunds will be given after this date. A $50 administrative fee will be assessed on all cancellations. SPECIaL SERVICES If special arrangements are required to attend this conference, including any access needs or dietary restrictions, please contact us by October 1, 2014. QUESTIONS? TEAR & MAIL Please contact Lisa Bierly 732-608-5350 or email [email protected] REGISTRATION – CONFERENCE & BREAKOUT SESSIONS Please complete registration online through PediatricComplexCare.org or mail form with payment to: Pediatric Complex Care association, 1827 Old Freehold Road, Toms River, NJ 08755 PaRTICIPaNT INFORMaTION Email (Required) ______________________________________________________ OPTIONAL EVENTS, BREAKOUTS & FEES Please select desired conference options below. First come, first served. Name _______________________________________________________________ Title _________________________________________________________________ Company_____________________________________________________________ Address _____________________________________________________________ City/ST/Zip ___________________________________________________________ Phone ( ) ________________________________________________________ PaYMENT INFORMaTION Total Amount Enclosed ________________________________________________ ____ Check/money order enclosed (Payable to Pediatric Complex Care Association) ____ Charge my credit card: m M/C m VISA m AMEX m Discover Credit Card # _________________________________________________________ Exp. Date ________________________ Verification # _______________________ Name on Card ________________________________________________________ Billing Address _______________________________________________________ City/ST/Zip ___________________________________________________________ Signature ____________________________________________________________ 10/22 OPENING RECEPTION REGISTRaTION 6:30-7:30PM at Embassy Suites m Will attend m Not able to attend 10/22 TOuRS OF HELEN BERNaRDY CENTER FOR MEDICaLLY FRaGILE CHILDREN For advance information about the Rady campus, please visit RCHSD.org. Bus departs from Embassy Suites at 3:30PM and will return by 6:00PM. Rady Children’s main hospital campus is located at 3020 Children’s Way, San Diego. m Bus m Personal Transportation REGISTRaTION FOR BREaKOuTS: Thursday, 10/23 11:30AM ma mB mC 1:30PM ma mB mC 3:15PM ma mB mC 2014 aNNuaL CONFERENCE RaTES: association Members: Early Bird by 8/29 Standard by 9/30 On site Other Professionals: Early Bird by 8/29 Standard by 9/30 On site Friday, 10/24 10:15AM ma 11:30AM ma 1:30PM ma mB mB mB mC mC mC Full $400 450 500 10/23 only $200 225 250 10/24 only $200 225 250 450 500 550 225 250 275 225 250 275 ANNUAL CONFERENCE OCTOBER 22-24, 2014 REGISTRATION NOW OPEN 1827 Old Freehold Road Toms River, NJ 08755 732.608.5350 PediatricComplexCare.org HOSTED BY SPONSORED BY OcT. 22-24, 2014 ANNUAL CONFERENCE