THE PWSA UK NATIONAL CONFERENCE 2014

THE PWSA UK NATIONAL
CONFERENCE 2014
Saturday 13th and Sunday 14th September 2014
The Hayes Conference Centre, Swanwick, Derbyshire DE55 1AU
“LIVING WITH PWS”
Following on from the very successful International Conference last year, join us for the first PWSA UK National
Conference since 2007. Our venue, The Hayes Conference Centre, is set in the beautiful, peaceful Derbyshire
countryside – but only 5 miles from J28 of the M1. It provides the perfect setting for what we hope will be a
successful, informative and enjoyable conference for parents, carers and, of course, for our children and adults
with PWS. This will be an opportunity for parents and carers to catch up with old friends, meet new ones and
share experiences whilst the children and adults with PWS take part in a fun packed programme of their own.
The conference programme is split into two different age ranges in PWS:
• Birth to 16 years on Saturday
• 16 years and over on Sunday
The programmes for children and adults with PWS will be appropriate to the age group on each day.
SATURDAY – PROGRAMME FOR PARENTS/CARERS WITH CHILDREN FROM BIRTH TO 16 YEARS
09.30 Registration and refreshments
10.00 Welcome
10.10 Research Update - Professor Tony Holland, University of Cambridge
11.00 Break and refreshments
11.30 Keeping your child fit and healthy – Dr Anne Livesey and Chris Smith, Brighton PWS Multidisciplinary
Clinic
12.30 Lunch – this will not be PWS friendly
The afternoon session offers a choice of workshops which are repeated to enable delegates to attend
sessions on two separate topics.
13.30 Changes to SEN Education and the Law – Rukhsana Koser, Langley Wellington Solicitors
Growth hormone treatment – Dr Shankar Kanumakala – Brighton Multidisciplinary Clinic
Medical and Dietary Issues (except GH) – Dr Anne Livesey and Chris Smith – Brighton MDC
Challenging Behaviour – Challenging Behaviour Foundation
Sensory Therapies – SENAD group
Your child at school – SENAD group
14.30 Break
15.00 Workshops
16.00 Final session to be confirmed
16.30 Programme ends
PWSA UK are very grateful to our generous sponsors:
Telephone: 01332 365676
Charity No: 1155846
www.pwsa.co.uk
SATURDAY – PROGRAMME FOR CHILDREN WITH PWS AGED 6-16 YEARS – 09.30 – 16.30
Programme for children aged 6 years upwards. Siblings are welcome but please note that the programme
is geared towards the needs of those with PWS.
“Wake up, shake up!” - Team Nature Hunt or, if weather too wet, crafts - “Tiger Feet” dance group
Lunch: PWS friendly Picnic on the lawn - Outdoor fun: Rounders, football, cricket, parachute - Party games –
pass the parcel, musical chairs/statues – prizes to be won! - “Magical Mayhem” Magician/Entertainer –
pampering sessions – face painting – video box – quiet room
There will be a special needs crèche based in the main conference centre for children from birth to 6 years.
All staff will be fully qualified and experienced in special needs, DBS checked and paediatric first aiders –
please book early, as places are limited.
*****
SUNDAY – PROGRAMME FOR PARENTS/CARERS WITH TEENAGERS/ADULTS AGED 16+
09.30 Registration and refreshments
10.00 Welcome
10.10 Research Update - Professor Tony Holland – University of Cambridge (talk as for Saturday)
11.00 Break and refreshments
11.30 Keeping teenagers and adults with PWS fit and healthy – Dr Susanne Blichfeldt, IPWSO
12.30 Lunch – this will not be PWS friendly
The afternoon session offers a choice of workshops which are repeated to enable delegates to attend
sessions on two separate topics.
13.30 Options for living away from home – presentations from Gretton Homes and New Directions
Managing challenging behaviour – Nina Holyer, New Directions
Post School Education – what to look for from colleges
Making sense of mental health and behaviour in PWS – Prof Tony Holland, University of Cambridge
Ageing in the over 30s – Dr Susanne Blichfeldt, IPWSO and Jackie Waters PWSA UK
14.30 Break
15.00 Workshops
16.00 Final session to be confirmed
16.30 Programme ends
SUNDAY – PROGRAMME FOR ADULTS WITH PWS AGED 16+ - 09.30 – 16.30
“Wake up, shake up!” Followed by Team Nature Hunt or, if weather too wet, crafts - Talk on Relationships –
Kendra Rhodehouse/Alison Woodhead – Lunch: PWS-friendly Picnic on the lawn – “Tiger Feet” dance group –
Bingo – Tombola – “Magical Mayhem” Magician/Entertainer – pampering sessions – face painting – video
box – quiet room
Please note the programmes may be subject to slight changes.
FEES
Parent/Carer
People with PWS
Professionals
Additional children
Saturday Crèche
Telephone: 01332 365676
£25.00 per day
Free of charge
£50.00 per day
£10 per day
Free of Charge for children with PWS, additional children £10
Charity No: 1155846
www.pwsa.co.uk
THE PWSA UK NATIONAL CONFERENCE 2014 - “LIVING WITH PWS”
Booking Form
Main contact name.………………………………………………………………………………………………………………………………..............
Confirmation of Booking will be by email unless otherwise requested.
Email address ……………………………………………………………………………………………………………………………………………….
Address ……………………………………………………………………………………….……………..……………………………………………………….
……………………………………………………………….……………….………………………………………….. Post code …………………………….
Contact Tel No ……………………………………………………………..
Names of all coming to the conference continue on a separate sheet if necessary
Age if
16 or
under
Tick if the
person
has PWS*
Tick for
the
crèche **
*Please select sandwich option for person
with PWS picnic lunch
HAM□, EGG
Tick the day
attending:
Saturday
Sunday
Total:
□, COTT CHEESE □
**Crèche only available on Saturday, 13th September. A registration form will be sent to you separately to
provide further details about your child
SATURDAY – PROGRAMME FOR PARENTS/CARERS WITH CHILDREN AGED 0-16 YEARS
Please select your preferred afternoon workshops – Choose TWO per person
Choose TWO workshops
Changes to SEN Education and the Law
Growth hormone treatment
Medical and Dietary Issues (except GH)
Challenging behaviour
Sensory therapies
Your child at school
Telephone: 01332 365676
Person 1
Charity No: 1155846
Person 2
Person 3
Person 4
www.pwsa.co.uk
Fee
£
SUNDAY – PROGRAMME FOR PARENTS/CARERS WITH TEENAGERS/ADULTS AGED 16+
Please select your preferred afternoon workshops – Choose TWO per person
Person 1
Person 2
Person 3
Person 4
Choose TWO workshops
Options for living away from home
Managing challenging behaviour
Post school education – what to look for from
colleges
Making sense of mental health and behaviour in
PWS
Ageing in the over 30s
TERMS AND CONDITIONS
Cancellations can be made no later than 14 days before the event and will constitute a full refund minus an
administration charge of 15% which will be deducted from the fee.
No refunds will be given if cancellation is less than 14 days before the event, however, you can send a
substitute. We reserve the right to cancel this event, make changes to the programme, speakers, venue or
date should this become necessary. We will endeavour to inform you of any major changes as soon as
possible. We cannot accept any responsibility for travel or accommodation.
Please tick to accept terms and conditions [ ]
Signature: ……………………………………………………………………………………………………………………………………….
PAYMENT
Online:
Payment can be made by visiting our website www.pwsa.co.uk go to “donate” and choose “National
Conference 2014” from the dropdown menu.
Please then post, fax or send a scan of your booking form to:
PWSA UK, Suite 4.4 Litchurch Plaza, Litchurch Lane, Derby DE24 8AA
Fax: 01332 360401
Email: [email protected]
By cheque:
Please make cheques payable to "PWSA UK" and send, with your booking form, to PWSA UK, Suite 4.4
Litchurch Plaza, Litchurch Lane, Derby DE24 8AA.
QUERIES
Any queries, please contact by email [email protected] or telephone 01332 365676 and speak to either
Maggie or Patricia.
Telephone: 01332 365676
Charity No: 1155846
www.pwsa.co.uk

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