Northern Clinical Networks & Senate Name of Group / Meeting: Head & Neck NSSG Date: 17.06.14 Time: 2.00pm – 4.00pm Venue: Evolve Business Centre, Houghton Le Spring Present: Eleanor Aynsley, Consultant Oncologist, JCUH Rachel Bannister-Young, CNS, Sunderland Kelly Craggs, H&N Macmillan Nurse, Sunderland Amanda Dear, Head & Neck CNS, Newcastle Hospitals Diane Goff, SaLT, Sunderland Shahid Iqbal, Acting Oncologist, NCCC Dawn Ivison, Head & Neck CNS, Sunderland Kath Jones, Team Delivery Lead, NECN Marjorie Leckonby, Patient & Carer Representative, NECN Shane Lester, Consultant Otolaryngologist, CDDFT Jim Moor, ENT Consultant, Sunderland Julie Newman, H&N CNS, CDDFT Kathryn Scollen, SLT, Newcastle Hospitals Claire McNeill, Peer Review co-ordinator, NESCN Fiona Stacey ,Dental Hygienist, Newcastle Helen Murdock CNS, North Cumbria University Hospitals Lorna Gamberini, Specialist SALT, North Cumbria Georgia Payne,Clinical Manager , Nutrition and Dietetics, South Tees Andrew Robson, Consultant Otolaryngologist, North Cumbria Shannon Rees, SaLT, South Tees Elspeth Desert, Consultant Clinical Health Psychologist - Cumbria Partnership Trust David Meikle, MDT Lead, Newcastle attendance: Apologies: EA RBY KC AD DG SI DI KJ ML SL JM JN KS CM FS HM LG GP AR SR ED DMe Page 1 of 7 Northern Clinical Networks & Senate Roy McLachlan, Network Director, NECN Charles Kelly, Consultant Clinical Oncologist, Newcastle Hospitals Alison Comett, Macmillan Head & Neck Specialist Nurse, South Tees Pauline Sturdy, South Tees Richard Wight, Consultant Head & Neck Surgeon, South Tees Laura Gladwell- Nelson, Newcastle Hospitals Brief Summary of Meeting: RMcL CK AC PS RW LG NSSG ACTION POINTS: Agenda Subject Item Actions Target date 1a Action Points from last meeting Amendments to action points from 2a- should read “evaluation” and not audit. 1b Action points 05.03.14 EA has agreed to be Vice chair and will take over as Chair in February 2015. 1c Chemotherapy Update Work undertaken to standardise protocol across the network. EA 18.07.14 confirmed protocols have been agreed by both North and South of the Network. EA to email document to CM. IMRT in Carlisle Group discussed IMRT provision for Carlisle patients in the North East and issues around the provision of this service. AD informed meeting was held on the 3.4.14 and most issues have been resolved. Transfer pathways have been completed - AD to forward to CM for 18.07.14 circulation. Person responsible EA AD Page 2 of 7 Northern Clinical Networks & Senate Agenda Subject Item Education day Actions Target date Person responsible AD advised accommodation is being provided however its sheltered accommodation with shared bathrooms. The practicalities of this were discussed in detail. AD advised progress has been made but the increase in work load was significant. Concerns were raised regarding access to a district nurse or a GP particularly OoH - how do patients register with a GP whilst having treatment away from home? AD to follow this up with Debbie Bennett and Jonathan Berry (GP Lead and representative for this group) 18.11.14 AD JM to forward details for presenters to CM JM 18.07.14 TB to be requested to present on the Clinical Networks and how they 25.06.14 link in nationally. KJ to discuss with TB KJ/ TB NSSG – group main objective to maintain standards and ensure equity across the network. Lack of Dieticians at NUTH 2a AD to provide JM with contact details of the head of dietetics in 25.06.14 Newcastle. JM will investigate and feedback at next meeting. AD/JM Peer ReviewAnnual report Reviewed and endorsed by group Guidelines Historic and deferring to national guidelines 2011 Constitution JM to forward link to CM. 25.06.14 JM EA asked if the group should also consider having network 18.11.14 EA Page 3 of 7 Northern Clinical Networks & Senate Agenda Subject Item Actions Target date Person responsible radiotherapy guidelines. EA to take forward. Work Programme Group discussed patients receiving radiotherapy at Carlisle and 18.11.14 discussed possible inequality for Carlisle patients. JM to investigate further and update at the next meeting. JM AD to forward update on awareness campaign to KJ. 18.10.14 AD KJ to update work programme. 18.11.14 KJ Radiotherapy to be added. 18.11.14 SI & EA CNS’s to update section on WP 18.11.14 CNS’s AHP’s to update section on WP 18.11.14 AHP’s Network wide audit agreed as “admission of patients receiving chemo-radiotherapy or radiotherapy”. Proforma to be drafted by SI and EA and forward to JM. This will be reviewed in three months. RBY confirmed she would provide first findings from the evaluation 18.11.14 of psychosocial intervention from one site. Group discussed ideally this would involve comparing psychosocial support, support group and no support. 18.11.14 Work programme to be amended as this is not an audit. RBY KJ AD informed Newcastle are undertaking an audit on pain. JM asked if SL could record this as an audit. SL to investigate and 18.11.14 feedback at next meeting. SL KJ to coordinate with the CNS & AHP’s re content for work Page 4 of 7 Northern Clinical Networks & Senate Agenda Subject Item Actions programme. 2c Survivorship Target date Person responsible 18.11.14 KJ 18.11.14 All 18.11.14 KJ End of Treatment summary forms; Sunderland currently undertaken work on end of treatment summary forms and JM also informed CQUINs funding is available. JM suggested all to contact Cancer Unit Manager at each trust. Survivorship leads confirmed;   Kelly Craggs – Sunderland Laura Gradwell-Nelson - Newcastle Cumbria, Co. Durham & Darlington and Tees- to be confirmed Group agreed the three main issues that need to be addressed are;    Holistic needs assessment end of treatment summary forms Signposting to better health KJ to update work programme. 2e Presentation CNS Activity – recommendations were discussed specifically the Presentation level one activity to be undertaken by someone else for example a attached health care practitioner. SL asked if this could be used to identify a gold standard of care from this information and then use this to 18.07.14 SL illustrate a gap in service. SL to forward a draft document to CNS. Page 5 of 7 Northern Clinical Networks & Senate 3a Clinical Governance Issues Oncology cover at Newcastle now resolved. 3b Research Research programmes of Improvements to be endorsed at the next 01.11.14 meeting. All MDT leads to provide completed programmes of Improvement to CM by 01.11.14 MDT leads Group discussed current trials. 3c Patient and Carer Action Plan CNS to provide local action plans to be feedback to this group. All to 18.07.14 email CM for the group to endorse the action plans. To be placed on 18.11.14 the work plan. CNS KJ New patient group formed at North Tees and Hartlepool. 3d 3e Audit Any other business Laryngectomny audit- to be removed from work plan. 18.11.14 KJ Network wide audit agreed as “admission of patients receiving 18.11.14 chemo-radiotherapy or radiotherapy”. Proforma to be drafted by SI and EA and forward to JM. This will be reviewed in three months. EA & SI Gastrostomy Data – Data collected and due to be sent to network for 18.07.14 analysis. JM to contact Elaine Robinson to collate the information. JM KJ advised the Network has launched the new Northern England Strategic Clinical networks website, address is - www.nescn.nhs.uk. CM advised the cancer network website www.necn.nhs.uk will run concurrently with the new website until the 1.8.14 to ensure all peer review documents are available to trusts. Page 6 of 7 Northern Clinical Networks & Senate 3f Dates meetings Tuesday 18th November 2014, 2.00pm – 5.00pm, Education event The Durham Centre.   4. Contact Business meeting 2.00 – 3.00 Audit event 3.00- 5.00 Close of meeting [email protected] tel 011382 52976 Page 7 of 7