Peggy Sissel-Phelan, Ed.D. Best Practices Working Group Health Literacy Section Arkansas Public Health Association Annual Conference May 12, 2011 Introduction of Concepts • Health Literacy • Best Practices • Plain Language Rationale for Plain Language Skill Building Resources Resources Definition ~ Need ~ Scope ~ Definition ~ Health literacy is the use of a wide range of skills that improve the ability of people to act on information in order to live healthier lives. These skills include reading, writing, listening, speaking, numeracy, and critical analysis, as well as communication and interaction skills. Health literacy allows the public and personnel working in all health-related contexts to find, understand, evaluate, communicate, and use information. (Calgary Charter on Health Literacy, 2008) Need ~ • 97 million adults in U.S. struggle with literacy • That’s one third of the U.S. population . . . • Half of all adults 16+ Cannot Find which foods contain a specific vitamin Identify a specific location on a map Use fractions Interpret a growth chart or table Need ~ Health Care Disparities • Race • Poverty • Class • Age • Ethnicity • Gender • Education • Cultural beliefs • Isolation • Language Need ~ Health Care Complexity • Primary Care • Specialties • Prevention • Prognosis • Access • Insurance • Diagnosis • Medication • Treatment • Compliance Need ~ NAAL results for Below Basic Group 37% have a HS or some college education 52% speak English as birth language 54% have no physical or mental disabilities Kutner M et al, Nat Center for Educ Statistics 2005 Definition ~ Understanding + Actions = Outcomes Need ~ Widespread + Immediate Scope ~ The Public + The personnel in all health-related areas • Practitioner’s role - give best possible care - communicate about the care • Practitioner’s goal - best possible outcome - patient understanding • Practitioner’s responsibility - culturally competent - assume that everyone may have difficulty understanding - have knowledge of barriers to care - create environment that helps all patients understand • Patients have the right to understand healthcare information that is necessary for them to safely care for themselves, and to choose among available alternatives. • Healthcare providers have a duty to provide information in simple, clear, and plain language and to check that patients have understood the information before ending the conversation. The 2005 White House Conference on Aging; Mini-Conference on Health Literacy and Health Disparities. • is clear and simple • the goal - patients are better able to: - Locate Form Questions Understand Act • Plain language guidelines have common set of principles • Provider should: - identify the audience - adapt to their needs and abilities - have clear communication objective. Shohet & Renaud Critical Analysis on Best Practices in Health Literacy CANADIAN JOURNAL OF PUBLIC HEALTH Volume 97 (S2) pp. S10 - 13 2006 COMPLEX PLAIN Passive sentences Active sentences Long paragraphs Short paragraphs Poly-syllable words Mono or bi-syllable Clinical language Colloquial language Past/mixed tense Present tense 3rd person (they, s/he) 2nd or 1st person (you, I) Health language/ Word Choice - No jargon and technical language - Use lay terms about health concepts - Terms clearly defined and explained - No abbreviations, acronyms and statistics It’ s Not Just Medical Terms . . . We are disseminating information about…. We are giving out information about… How do you administer the medication? How do you give the medicine? This product has an extensive list of symptoms that it treats… This medicine can help with many things like fever, or pain, etc…. Signage Intake forms Medications Treatment plan Self care directives Communication style Adequate time Feedback loop Pictures Sequence Demonstrations Video Plain Writing Act of 2010 (Public Law No: 111-274) • Federal agencies must use “plain writing” • All “covered documents” issued to public ~ Letters, publications, forms, notices, instructions ~ Anything relevant to federal benefits or requirements Alternative Words Using Plain Language Based on: Plain Language Alternatives for Patient Information and Consent Materials Copyright © Sharon Nancekivell 2002-2007. All rights reserved. Electronic or print redistribution of this work for nonprofit purposes is permitted, provided this notice is attached in its entirety. All unauthorized, for-profit redistribution is prohibited. Abdomen Stomach /area around stomach Abscess Swollen area filled with a thick yellow or green liquid called pus Accompany Go with Aerosol Spray Biopsy Taking a small bit of tissue to test Blood clot Clump of blood By mouth Swallow it Resources 1. Universal Precautions Tool Kit http://www.ahrq.gov/qual/literacy/healthliteracytoolkit.pdf 2. National Action Plan to Improve Health Literacy http://www.health.gov/communication/hlactionplan/pdf/Health_Literacy_ Action_Plan.pdf Universal Precautions Tool Kit Resources 3. Plain Language Alternatives for Patient Information and Consent Materials Copyright © Sharon Nancekivell 2002-2007. http://healthcare.partners.org/phsirb/consfrm_files/Plain_Language_Alternative s_for_Patient_Information_and_Consent_Materials.pdf 4. Pfizer Clear Health Communication Initiative http://www.pfizerhealthliteracy.com 5. NYU Patient and Family Resource Center http://www.nyupatientlibrary.org/medcenter/build-skills Resources 6. Center for Health Care Strategies Health Literacy Fact Sheets http://www.chcs.org/publications3960/publications_show.htm?doc_ id=291711 7. Institute for Healthcare Advancement www.iha4health.org Michael Villaire, MSLM Director, Programs and Operations [email protected] (800) 434-4633 x202 8. American Medical Association Health Literacy Program and Kit www. ama-assn.org Resources 9. Help Your Patients Understand.” Video Available from AMA Foundation http://www.ama-assn.org/ama/pub/category/8035.html 10. http://www. plainlanguage.gov
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