Triangle Area Ostomy Association April 2014 President’s Message: It has been my pleasure and honor to serve as President of the Triangle Area Ostomy Association since January of 2012. Following the April TAOA meeting, Sam DeAngelo, current vice-president, will assume the position of President of TAOA. I plan to remain an active member of TAOA and look forward to seeing you at meetings in the near future. Thank you, Sam, for your service over the past couple of years!!! Thank you and best wishes, Sam Bundy, President NEWS AND UPDATES April Program: Dr. Matthew Milowsky with the urology oncology program at UNC. Read more about Dr. Milowsky on Page 4. May Program: Discussion groups by ostomy type led by WOC nurses — Please join us for this informative sharing opportunity. There will be groups for urostomy, colostomy, ileostomy and spouse/support person. June Program — rescheduled from March: Terri Kuczynski, a counselor with the Rex Hospital Palliative Care team, will lead a discussion about dealing with your feelings about your ostomy . Terri has spoken to our group often and always leads a great discussion. Still seeking a new newsletter editor - We are searching now for a replacement for Jes Ormondroyd, newsletter editor for the past two years. In the interim, Stephanie Yates will compile the newsletter, but she is eager to pass it along to an interested member. The Bypass is produced in Microsoft Publisher currently and a template is set up. E-mail is essential to receive the content to include. Please contact one of the board members if you are interested in volunteering. IN THIS ISSUE: April Birthdays Ostomy Inspirations Local Support Group Info Member Information WOC Nurses Minutes Meet our April speaker Upcoming UOAA meetings TAOA Membership Form TAOA Dues Policy More News You Can Use Page 1 Page 1 Page 2 Page 2 Page 2 Page 4 Page 4 Page 4 Page 5 Page 5 Page 5 CALENDAR OF EVENTS: April April April April April April April 1 April Fools Day 1 TAOA Meeting, Rex, 7:15 pm 8 TBC Meeting Chapel Hill, 7 pm 13 Palm Sunday 15 Passover Tax Day 20 Easter 21 CCFA Meeting Rex, 7:30 pm Jack Lilie Fred Toms Diane Hill April 14 April 19 April 23 TRIANGLE AREA OSTOMY ASSOCIATION (TAOA) TAOA is a local chapter affiliate of The United Ostomy Associations of America, Inc. Membership is open to ostomates, nurses and others who support our mission. The UOAA chapter affiliation fee is included in membership dues paid annually to TAOA. Each member receives a subscription to THE BY-PASS, our monthly newsletter publication. New members are always welcome. OUR MISSION We strive to provide assistance to persons who have, or anticipate having, a surgical diversion of the intestinal or urinary tract (Colostomy, Ileostomy, Urostomy, Continent diversion). We provide personal and family support, educational services and interaction with our professional community. We support Friends of Ostomates Worldwide by donating supplies for distribution to ostomates around the world. GROUP OFFICERS AND CONTACT INFO: All officers are available for member support President: Sam Bundy 919-876-0736 VP: Sam DeAngelo 919-552-7890 Secretary: Bonnie Sessums 919-403-7804 Treasurer: Ruth Rhodes 919-782-3460 Editor: Webmaster: Ed Withers 919-553-9083 FOW Coordinator: Jeff Burcham 919-847-9669 Visitor Coordinator: Stephanie Hughes 919-480-1172 Prof. Advisor: Stephanie Yates 919-613-2035 Website: www.RaleighUOA.org or www.triangleostomy.org Email: [email protected] TAOA MEETING INFO: MEETING: The first Tuesday of the month, September – June. Time: 7:15pm NO meeting in July or August. LOCATION: Rex Hospital, 4420 Lake Boone Tr., Raleigh, 27607. Enter through Main Entrance from parking deck. Immediately turn LEFT into the Main Waiting Room. INCLEMENT WEATHER: To verify a cancellation, call Rex Hospital at 919-784-3100 If the Wake Co. Schools are closed due to weather conditions, there will be NO meeting that evening. TRIANGLE BLADDER CANCER SUPPORT GROUP CCFA SUPPORT GROUP Date: Third Monday of the Month Time: 7:30 pm – 9:00 pm Place: Rex Healthcare Contact: Reuben Gradsky [email protected] Date: Second Tuesday of the Month Time: 7 pm – 8:30 pm Place: Carolina Pointe, Chapel Hill, NC Contact: David Langham 919-948-0589 [email protected] www.trianglebcs.com DISCLAIMER 2 Articles and information appearing in this newsletter are not necessarily endorsed by the Triangle Ostomy Association and may not be applicable to everyone. Always consult your physician or WOC Nurse for all medical advice. WOC Nurses Wake Med Leigh Ammons 919-350-7668 Melanie Johnson 919-350-7668 Debbie Orr 919-350-7668 Wake Med, Cary Joanna Burgess 919-350-5231 UNC Hospital Donna Brickman 919-843-9234 Juliet Idiabonya 919-843-9234 Lisa Jenkins 919-843-9234 Barbara Koruda 919-843-9234 Lara Leininger 919-843-9234 John Maotko 919-843-9234 Donna Partin (outpt) 919-966-9344 Janet Rankin 919-843-9234 Duke Regional Tom Hobbs 919-470-7215 Felicia Street 919-470-6145 Duke Jane Fellows 919-681-7743 Michelle Rice 919-681-2436 Angela Richardson 919-681-7743 Leanne Richbourg 919-681-6694 Stephanie Yates (outpt) 919-613-2035 Duke Health Raleigh Hospital Amanda Eltz 919-954-3725 Krys Dixon 919-954-3446 Maria Parham Hospital Kathy Thomas 252-436-1700 Durham VA Medical Center Reba Giles 919-286-0411 X 6177 Sara Harbison 919-286-0411 X 5297 Rex Hospital Angela Joyner Rachel Breazeale Teri Ourada 919-784-2048 919-784-2048 919-784-2048 For more information contact our Customer Interaction Center at 1-800-422-8811 Monday – Thursday, 8:30 a.m. – 8:00 p.m., ET Friday, 8:30 a.m. – 6:00 p.m., ET www.ConvaTec.com 3 MINUTES OF THE MARCH 4, 2014 MEETING OF THE TRIANGLE AREA OSTOMY ASSOCIATION (Meeting was cancelled due to inclement weather) Meet Dr. Matthew Milowsky — Speaker at our April meeting My career focus is the development of novel treatments for patients with genitourinary (GU) malignancies. I previously led the Genitourinary Oncology Research Program at New York Presbyterian Hospital-Weill Cornell Medical College followed by the development of a premiere clinical and translational research program in urothelial cancer at Memorial SloanKettering Cancer Center (MSKCC). In my role as Section Chief of GU Oncology at UNC, I am focused on the development of a premiere translational and clinical research program in multiple GU-related cancers including prostate, bladder, kidney and testicular cancer. The clinical trials program comprises investigator initiated, cooperative group (ALLIANCE), and pharmaceutical sponsored trials. I work closely with the other members of the GU medical oncology service. The specific aim of the translational research program is to design GU-specific clinical trials that utilize an integrated genomics approach to characterize tumors for genetic alterations. This goal is predicated on the concept that genomic alterations predict sensitivity or resistance to novel targeted agents. The central tenet is that prospective characterization of tumors in the laboratory will accelerate the development of promising novel agents in the clinic. A second, clinically oriented goal of the GU program will be to design and conduct trials that specifically address the issues related to the treatment of older adults with cancer. Upcoming UOAA conferences 2014 UOAA Mid-Atlantic Regional Conference (Hosted by Ostomy Support Group of Northern Virginia, LLC and it's satellite: Ostomy Connections Support Group, Fredericksburg, Virginia Friday/Saturday/Sunday, May 2-4, 2014 Holiday Inn Washington Dulles International Airport, Dulles, Virginia 4 More News You Can Use: Welcome to Eric Webster, who attended his first TAOA meeting in February. Eric has had an ileostomy for over 30 years and learned about the association from the ostomy clinic at Duke Raleigh. Best wishes to John Saunders for better health this spring. John had ostomy surgery in October but has had some complications plus the flu since then. Visitor Training Session (held 2/22) was a success. Four members received training - Eric Webster, Dan Richards, Alison Lee, and Domenique Tanzini. Thanks to Stephanie Yates, WOC nurse for coordinating and presenting the training. Cancellation of the March meeting was due to Wake County Schools being cancelled the day of our meeting. We adopted this policy due to the wide variation in road conditions and the school system is usually being safe when they cancel school. A great big THANK YOU to Ruth Rhodes and to Ed Winters, for e-mails and telephone calls to members reminding them of this policy on the day of the March meeting. Please be sure to inform the TAOA Board of your phone and e-mail address changes. TAOA ANNUAL DUES POLICY *YOUR ANNUAL STATEMENT FOR DUES is issued in the June edition of the BY-PASS Newsletter. *ANNUAL PAYMENT IS DUE PRIOR TO AUGUST 31st EACH YEAR. Issue payment with TAOA Form. *Please notify the Treasurer if your payment must delayed or if you are unable to pay. (Confidential) *Failure to reply will result in termination of membership. Reinstatement may be requested in writing. TAOA MEMBERSHIP FORM Date: ___________________ Name: __________________________________________________ Spouse:_________________ Address: _________________________________________________________________________ Phone: __________________________ Email: __________________________________________ Year of Surgery: ____________ Preference for Newsletter delivery: [ ] Email [ ] U.S. Mail Type of Ostomy: [ ] Colostomy [ ] Ileostomy [ ] Other _______________ [ ] Urostomy (Ileal conduit) [ ] Supporter of TAOA/No Ostomy Comments: ______________________________________________________________________ ANNUAL DUES $20.00 PAY TO: TRIANGLE AREA OSTOMY ASSOCIATION (Abbreviation: TAOA) PAYMENT ENCLOSED: $_____________ [ ] CASH [ ] CHECK [ ] MONEY ORDER [ ] I request Complimentary Membership. I cannot pay dues at this time. (Information is Confidential) MAIL COMPLETED FORM WITH PAYMENT OF DUES TO: Ruth Rhodes, Treasurer / 8703 Cypress Club Drive / Raleigh, N.C. 27615 5 NEXT MEETING: Tuesday, April 1, 2014 at 7:15 pm, Rex Hospital PROGRAM: Dr. Matthew Milowsky, co-director of the urologic oncology program at UNC Lineberger Comprehensive Cancer Center FOR PROVIDING THE PRINTING OF THIS NEWSLETTER OUR THANKS TO 8703 Cypress Club Drive Raleigh, NC 27615
© Copyright 2024 ExpyDoc
