Patient Survey on The Delivery of Surgical Information Mr Roy Gurprashad Surgical SpR Luton & Dunstable Breast Unit Background & Aims  Giving information: fundamental part of surgical practice  Giving clear information on proposed surgery at the same time as breaking bad news can be challenging  Facts may not be remembered but how news and information is delivered can leave a lasting impression  Aim- Do our Breast Cancer Patients fully understand the implication of Surgical intervention?  How well do we deliver the information?  How can we improve our service? Methods  Questionnaire Survey  Outpatients 1 week after Surgery (1st post-op visit)  1st March 2014 - on-going Preliminary Results Wire Guided WLE WLE Mastectomy Mastectomy & Reconstruction SLNB 6 10 4 2 Axillary Clearence 2 0 2 0 No Axillary Procedure 3 0 0 1 Q1 When you were told by the surgeons that you need Surgery, the information he or she gave was?  Very clear 28  Clear 2  Unclear 0  Very unclear 0 Q2 When you spoke to the breast care nurse about surgery, the information she gave you was,  Very clear 25  Clear 5  Unclear 0  Very unclear 0 Q3 The written information you were given (information pack)- did it make it clear to you the nature of the operation you were going to have and the side effects/risks?  Yes it did- it made it very clear 21  Yes it did- Clear 9  No it didn’t- It was unclear 0  Not at all- It was very unclear 0 Q4 Did you find the information that you received from the surgeon, breast care nurse and the information pack helped you prepare for your surgery and the possible side effects afterwards?  Yes, it was very helpful 18  Yes, it was helpful 11  Not really 0  Not at all 1 Q5 Did the Surgeon and breast care nurse explain the risks of Surgery  Yes, very clearly  Yes, clearly 21 8  No, it was unclear 1  No, it was very unclear 0 Q6 Did the information you received regarding your surgery match your expectations? In other words, was the surgery as you expected?  Yes, very much as expected 23  Yes, mostly 3  Not really 3  No, what happened at surgery was completely unexpected 1 Q7 If your expectation and your actual experience of surgery did not match, was this because,  Too little information was given to me beforehand 0  Wrong information was given to me beforehand 0  Too much information was given to me beforehand causing confusion 0  Inconsistent information (different information from different sources) 1  Nothing to do with the information I received- other reasons 3 Q8 Did you get more information about your surgery from the following sources?  Internet 10 (NHS 3, Google 1, Macmillan 2, Breast cancer care 2, Cancer Research UK 2)  Friends and Family 10  Nurse or Doctor who did the preclerking (preop check) 20  Other Sources 0 Qu 10 From whom did you get most information about your Surgery and side effects/risks of the operation? Please tick only one box  Surgeon 12  Breast care Nurse16  Information Pack 1  Internet 1  Friends and Family 0  Nurse or Doctor who did the pre-clerking (pre-op check) 0  Other 0 Qu 10 How can we improve the information provided to you and future patients in this Breast Unit? Please write what you think below.  ‘Impressed with information and follow up’  ‘Good enough already’  ‘Very impressed with care’  ‘Everything perfect’  ‘Macmillan and Breast care staff fantastic. 10/10’  ‘Can’t fault anything’  ‘Information was concise’  ‘Treated very well’ Qu 10 How can we improve the information provided to you and future patients in this Breast Unit? Please write what you think below.  ‘Too rushed, unable to talk to the nurse long enough’  ‘Follow up after operation to make sure fully recovered before radiotherapy’  ‘Condense the information pack. A link to a internet video would be easier to view than to read’  ‘More information for relatives regarding what happens on the day of surgery, where to wait and timescale’ Summary of Findings  Majority of our patients are satisfied: 4 did not feel they     were fully prepared for what happened at surgery despite being happy with the information provided BCN is the main source of information followed by surgeons Significant numbers get information from pre-clerking nurse, internet and friends and family Information pack is not a main source of information An on-line video may be a further medium to explore