Final master project proposal DESIGN FOR CHILD & HOSPITAL designing a child-friendly environment for medical procedures Student: Alice van Beukering Coach: prof. dr. Loe Feijs 11 - 10 - 2013 Table of Contents Acknowledgement Table of Contents 1 Introduction 2 Vision on Design 2.1. Vision on Society 2.2. Vision on Design in Health Care 3Context 3.1. Medical Perspective 3.2. Child Perspective 4 Design 5.1. 5.2. 5.3. 5.4. 5 References Design Question and Objectives Design Space Design Approach, Planning and Deliverables Design Iteration One Appendix www.alicevanbeukering.com/Appendix.zip INTERACTIVE INTERIOR DESIGN at an hospital in London “Nature Trial”, by Jason Bruges Studio 2 3 chapter 1 chapter 2 Introduction Vision on Design In this document I describe my proposal for my final master project that runs from September 2013 up until June 2014, at the faculty of Industrial Design at the TU/e. The project I propose is in commission and close collaboration with paediatric-intensivist dr. Piet Leroy from Maastricht University Medical Centre (MUMC). The project originates from a serious problem in daily pediatric practice: “How to deal with procedure related stress, and pain in sick children?” In modern pediatrics, procedures are part of daily practice. These are relatively small medical interventions for which no anaesthesia is administered and that take place outside the operating room, such as blood sampling, lumbar puncture and wound dressing. These procedures are painful and stressful mainly when children need to undergo these procedures regularly. The design of the hospital rooms, the pediatric surgeries, where children need to undergo these procedures is highly medical and purely focuses on maximizing the doctor’s comfort and performance. These rooms nearly never focus on the comfort of the patient, while I believe the physical, medical environment plays a major role in constituting (the quality of ) the care experience. Therefore, the challenge is to create a calm and child-friendly environment by re-designing these hospital rooms. In this way, striving to optimize the child’s comfort and reduce procedure related 4 “how to design a comfort- and child-centred pediatric surgery, to reduce stress and anxiety in sick children?” dr. Piet Leroy stress and anxiety. In the end, I hope to create an environment that, on one hand enhances the quality of the care experience for children and their parents. And on the other hand, facilitates medical staff in carrying out procedures more effectively in a patient and child-friendly manner. In this proposal, I will first describe my personal vision on design, since this forms and clarifies my motivation for my final master project proposal. Thereafter, I will describe the context, from a medical and child perspective. Ultimately, I zoom in on the design perspective, which provides the framing, objectives, and design space of the project, as well as details on the design approach and further planning of the project. 2.1. Vision on Society 2.2. Vision on Design in Health-Care Human well being, health-care and psychology are topics that always have intrigued me. Currently, our healthcare sector undergoes major changes and faces new challenges in today’s society. The continuation of the increase of life expectancy is a fact, as we live in an aging society. Technological and medical developments improve diagnosis, conception and treatment of diseases. IC technologies, such as the Internet, facilitate the democratization of knowledge, which changes the role of the patient and health care professionals. The patient becomes a more active participant in the care process and a partnership between patient and health care professional arises. In conjunction with these changes, the costs in the health care sector are rising explosively, as a result of which financial and economical interests have an increasing influence on the health care system. This all has an undoubted effect on the shape and sustainability of the modern health care system. The medical care as provided by professional’s shapes the quality of care. In addition to the medical care provided by professionals, the shape of medical products and environments contribute greatly to the overall experience of the quality of care. Moreover, outside the hospital context, medical products often play an even more central role in providing care, moreover in shaping our quality of life. Think of a hearing aid device, a wheel chair, and a blood glucose meter for people with diabetes, products that provide everyday medical care. These technological, medical, economic and sociological developments have complex reciprocal relationships. Therefore, I believe the new challenges in health care require collaboration between different fields of expertise. Knowledge and experiences should be shared, in contrast to the traditional analytical approach tied to either the technological, medical, economic or sociological domain. As a designer I am particularly strong in integrating and connecting different fields of expertise, perspectives and knowledge, while taking a refreshing and holistic approach to the health care sector. Current procedure-centred medical products and environments tend to limit their focus to the disease, diagnosis, treatment and patient, reducing the patients to objects, to data generators. Within, the fragile healthcare context, I believe products and environments should embody an adaptive (nuanced) and careful approach to people and reach beyond their “patient”-label. Eventually, not only our physical well being but also our emotions, our psychological and social well-being affects how our immune system fights diseases and thus, influences our health. People-centered, instead of procedure-centered. Products that focus on the strengths (what the person is capable of), independence (gaining a sense of control) and confidence of people, to offer a meaningful, positive care experience. Given the current financial challenges in healthcare, I dare to believe that taking a human and holistic approach to health care has the 5 chapter 3 Context potential to smartly take economic interests into account. For example, when patients are more at ease, and more relaxed, patients are more cooperative, and medical care can be provided in both a more efficient and comfortable manner. 2.3. Final Master Project The framework of this design project provides a challenging opportunity to bring my personal vision on design in practice. The project originated from a need in the medical field for design as a contributing factor in optimizing children’s comfort during medical procedures. Herein, the combinations of (child) psychology, medicine and design are key. Furthermore, the design question is primarily driven by medical and socio-ethical developments, but economic and technological developments play an important role as well. Overall, the design challenge of the projectt naturally fits my design vision, as the project is about how to improve the care experience for children through the design of the health care environment. Sources: Sternberg, E. (2009) “Healing spaces, the science of place and well-being”, Harvard, University Press French, D., Vedhara K, Kaptein, A., Weinman, J. (2012) “Health Psychology”, Oxford: BPS Blackwell Tugade, M.M., Fredrickson, B.L. and Feldman Barrett, L. (2004) “Psychological Resilience and Positive Emotional Granularity: Examining the Benefits of Positive Emotions on Coping and Health” Journal of Personality, 72: 1161-1190 Duchatteau, D.C., Vink, M.D.H. (2011) “Medisch-Technologische Ontwikkelingen Zorg 20/20”, Raad voor de Volksgezondheid & Zorg 6 In this section, I will consicely describe the context of the design project (see Appendix A for more detail), based upon and in close equivalence to the original wording of the design brief (see appendix B) written by dr. Piet Leroy and his doctoral thesis (see appendix C). The design project originated from the research topic of pediatric-intensivist en sedationist dr. Piet Leroy. 3.1. Medical Perspective Invasive diagnostic and therapeutic procedures, such as blood sampling, vascular, access, wound dressing and lumbar puncture, form an important part of daily paediatric practice. These are relatively small medical interventions for which no anaesthesia is administered and that take place outside the operating room. In order to perform these medical procedures safely and effectively immobility of the child is necessary. However, often these procedures are painful and stressful for children. As a result immobility and cooperation of children becomes a serious and complex problem during medical procedures. Local anaesthesia, reassurance and distractions techniques often are insufficient, and subsequently many children are not able to undergo these procedures without some form of physical restraint. In addition to this, the use of forced immobilization and physical restraint is increasingly considered inhuman, especially in non-lifesaving procedures, as children have the right to optimal health care. The vast majority of pediatric procedures are nonlifesaving procedures. Moreover, there are studies that show that restraint has been associated with adverse effects such as: speech and language problems, a negative self-image, fear of distrust in medical care, and with post-traumatic stress disorder. Driven by these findings, a lot of work has been done over the last years for the improvement of the overall quality of Procedural Sedation and/or Analgesia (PSA) in children in the Netherlands, as a solution for this problem. “PSA can be defined as the use of sedative, analgesic, and/or dissociative drugs to provide anxiolysis, analgesia and motor control during painful or unpleasant diagnostic and therapeutic procedures” [11]. As a result an evidence based multidisciplinary guideline has been published as the golden standard for PSA in children [10]. Experiences in the application of PSA in children, at the MUMC, have led to an impressive improvement of the quality of care for sick children. However, the experiences in the process towards the implementation and realization of a comfort-centred approach generated new questions and shortcomings. The need for design as a contributing factor in optimizing children’s comfort during PSA and medical procedures became evident. The atmosphere created by the direct environment where the medical procedures in children are performed proved to play a major role in the success of the PSA practice. Particularly in light sedation (see Appendix A) the atmosphere of the direct environment plays a fundamental role. Many factors influence the atmosphere of the environment where the procedures are performed such as; personal experiences, expectations or fears in the child, the behaviour of the professionals, but also the of the design of the room where procedures take place in general is highly important. Currently, the surgeries that are used to perform light sedation in children are purely procedure-centred, maximizing the comfort and performance of the medical staff. Here, ‘surgery’ refers to the typical procedural treatment rooms in a hospital, see Figure 1, and which are located at different departments of the hospital (i.e. the emergency or children’s department). Although, special child-surgeries exists and are decorated with ‘child-friendly elements, one cannot be convinced of a comfort and child-friendly centred design of these rooms, see Figure 1, 2, 3 & 4. In this context, the question arose: “how to design a comfort- and childcentred pediatric surgery, that facilitates the performance of standard medical and PSA procedures in sick children?” 3.2. Child’s Perspective At this point, I have described the rationale behind the project from a medical perspective. In this project, the child perspective is central in the process towards a design solution. Therefore, in this section I concisely describe the child’s perspective when facing, illness, hospitalization and undergoing medical procedures, see appendix D for more information. 7 Figure 1: Current pediatric surgery, at MUMC Figure 2: Child perspective at current pediatric surgery, at MUMC Figure 3: Medical equipment at pediatric surgery, at MUMC In general, the hospital environment provides a place for the diagnosis, treatment and healing of people afflicted with various illnesses. When entering the western health care system, patients receive contemporary care in the hands of professional doctors and staff equipped with modern technology for diagnosis, treatment and conception of illnesses. Although, the modern hospital facility is concerned with providing the best medical care available, the experience of illness and hospitalisation nonetheless exerts a tremendous amount of psychological distress, and might actually be one of the most distressful events in the lifetime of people [20]. When the patient is a child (0 up and until 17 years old), the experience of illness and hospitalization is even more likely to be a stressful and traumatic event, for child and family. In the child’s perspective the hospital is an unfamiliar, intimidating and incomprehensible environment, with frightening and unfamiliar devices, noises and people. On top of children’s generally heightened stress and anxiety levels, it is often very difficult for children to feel confident and reassured that a medical procedure has the actually purpose of helping them and treating their illness. Instilled by fear, this might lead to an uncooperativeness of children during medical procedures [3]. Excessive and recurrent anxiety, pain and stress, decreases the child’s ability to cope with a medical procedures, and potentially leads to transient or lasting behavioural and psychological difficulties in the child [2, 5, 6, 12]. Therefore, for children (i.e. oncology, diabetic or cystic fibrosis patients) who Figure 4: Peditric Intensive Care Unit, at MUMC, 8 where medical procedures are carried out “To a child the hospital is like a foreign country to whose customs, language and schedules he must learn to adapt” (Gelbert, 1958) suffer from a chronic, prolonged or severe illness, and who require repeated and/or frequent medical procedures, coping with procedure related stress , anxiety and pain is likely to be even more difficult. The child’s anxiety in anticipation of procedure related pain causes an increase in sympathetic responses to the pain stimuli. An increase in the child’ awareness of the pain signal reduces pain thresholds and subsequently increases the pain experience [1, 12]. Due to the interacting mechanisms of anxiety and pain, a negative spiral originates wherein pain cumulatively builds up when the child is exposed to repeated painful medical procedures. On top of this, physical restraint has been, and still is, a method for immobilizing children to be able to perform medical procedures. In the child’s perspective, this is an even more stressful, incomprehensible and hostile act that results in a struggle between the child and medical professionals. It is therefore logical that restraint has been associated with a fear of and distrust of medical care, and with post-traumatic stress disorder [4]. Moreover, according to pediatric nurses, restraint is even seen as a more traumatic for a child than the treatment itself [19]. In situations whereby parents of children are involved in the use of restraint, a negative effect on the child-parent relationship is the result [14]. 9 chapter 4 Design Up till now, I have provided an understanding of the context of my final master project. In this section, I will further zoom in on the framing, objectives and design space of the project. In addition, I provide details on the design approach and the further course of the project towards the expected endresult. 4.1. Design Question & Objectives The design question that forms the starting point of the project is: “How to design a comfort- and child-centred pediatric surgery, that facilitates the performance of standard medical and PSA procedures in sick children (0 to 17 years)?”. Ideally seen, I would, of course, like to adress this general design question. However, this question is too broad and unspecific in scope of my final master project, and therefore requires further framing. Subsequently, I formulated the following design question and associated objectives, see Figure 5. The design question and associated objectives are based upon an extensive context exploration and multiple consultations with pediatric-intensivist dr. Piet Leroy. The project focuses on the laughing gas procedure, since professional experience indicated that the direct environment is of particular importance in realizing a comfort- and child-centred approach in this setting. In addition, the user group will consist of a primary user group; sick children that need to undergo a laughing gas procedure, and a secondary user group; the medical staff that performs the laughing gas procedure. In this project, I will focus on children 10 “How to design a comfort- and childcentred pediatric surgery optimized for performing laughing gas procedures in sick children of 4 to 8 years old?” That, > “Creates a child-friendly atmosphere and environment for sick children in the ages of 4 to 8 years old (and their parent(s))” (Objective 1) > “Invites and/or persuades medical staff to behave in a child-friendly manner” (Objective 2) > “Facilitates medical staff in performing laughing gas procedures” (Objective 3) > “Takes the current financial challenges in health care into account” (Objective 4) Figure 5: Design Question and Objectives (and their parent(s)) in the ages of 4 to 8 years old, since this age group is most susceptible for the execution of successful laughing gas procedures. Throughout the entire design process iterative, continuous and critical reflection on the following question is key: > “What means comfort- and child-centred in the context of the design of a paediatric surgery and the execution of laughing gas procedures?” 4.2. Design Space The design space of the project provides a framework, wherein the expected end-result (= design) of a design project will originate. Moreover, it can be seen as a very first positioning of the design project in relation to other work done in the specific field of design. Benchmark Related work in the field of design products for sick children and the design of children’s hospital environments, show the value and power of design. Moreover, it provides an indiation of the possible end-design of my final master project. At first, extensive work has been done in the field of interior design of health care facilities, whereby mostly the use of colours, light and spatial layout play a role. The book “Healing space, a science of place and well being” by E. Sternberg [21], provides an overview of research that has been done about the relationship between environment, human and health. This underpins, that the design of our built environment has the power to influence the healing process and health of people. In addition, the book “Desiging the World’s Best Children’s Hospitals” by B. Komiske [9] (see Figure 6 & 7), contains an overview of interior designs in children’s hospitals over the world. Furthermore, there are quite a number of products designed for sick children in hospitals. Examples include, children’s books about medical procedures, such as “Radio-Robbie” [7] and “Chemo-Kasper” [15], the “KanjerKetting” (“ChampChain” in English) [13] (see Figure 13), the pain-passport [18] and the “superformula to fight cancer” [22] (see Figure 12). The benchmark shows that design work in the field of interior design of children’s hospitals mainly includes the design of general hospital spaces and patient rooms. As I know to date, the only design work that has been done in the field of a specific procedural and medical rooms in hospitals, is the “MRI for pediatric patients” by Philips [16] (see Figure 8 & 9). In addition, in general the interior and product design work in the field of children’s hospitals particularly includes static design work, in contrast to interactive and intelligent products. The “MRI for pediatric patients” by Philips and the “Nature Trial” by Jason Bruges Studio [17] (see Figure 10 & 11) are two rare examples, that include interactive aspects in their designs in the field of interior design of children’s hospitals. Design space and expected result Based upon, the benchmark described in the previous section, the design space is defined. Within the design space I identify two design layers that constitute the design space: > (1) Interior design layer: This first layer is about the design of the interior decoration and spatial layout of the pediatric surgery. The (re-)design of the medical equipment, is outside the scope of the project. > (2) Interactivity and intelligence design layer: This second layer is about the creation of an interactive and intelligent environment, wherein a reciprocal interaction between different users (child, parent(s) and medical staff ) and the pediatric surgery environment is central. 11 INTERIOR DESIGN Figure 6: Designing Children’s World’s Best Hospitals INTERIOR DESIGN Figure 7: Designing Children’s World’s Best Hospitals INTERACTIVE INTERIOR DESIGN PRODUCT DESIGN Figure 8: “MRI for Paediatric Patients”, by Philips Figure 9: “Kitten Scanner”, by Philips INTERACTIVE INTERIOR DESIGN INTERACTIVE INTERIOR DESIGN Figure 10: “Nature Trial”, by Jason Bruges Studio Figure 11: “Nature Trial”, by Jason Bruges Studio Within this design space the expected end-result of the project will originate. The primary focus of the design space will be on the second design layer, since using interactivity and intelligence, in my opinion, are underexposed elements in related design work done in the field of children’s hospitals. Furthermore, a focus on interactivity and intelligence of a paediatric surgery allows a clear differentiation and positioning of the expected end-result of the project in contrast to other work done in this field. Moreover, adding elements of interactivity and intelligence have the potential to create more rich and dynamic interactions between different users in the context and the pediatric surgery environment, i.e. the possibility to create an dynamic atmosphere of the pediatric surgery that changes according the preferences of different types of users. Hereby, the design space will not be exclusively limited to the design of the pediatric environment itself. Products in the relation to the peditric environment are also in scope of the project, i.e. the “Kitten Scanner” of Philips, see figure 9. therefore, most rewarding and motivating. Therefore, I will aim to create a ‘social impact’ with the design result of my final master project whereby; I hope that the project rationale and associated design will find its way into other fields and communities outside the design community of the TU/e. Design approach In this project I will follow an iterative design process, which is a design methodology based on a cyclic process of prototyping, testing, analysing and refining a product or process [23]. Design Medicine Psychology Economic Socio-Ethical 4.3. Design Approach PRODUCT DESIGN PRODUCT DESIGN Figure 12: “Superformula to Fight Cancer”, by JWT Brazil Figure 13: “KanjerKetting”, by VOKK Here, I describe the design approach. But, first I briefly go into my personal ‘mind-set’ behind the project. ‘Mind-set” As a designer I aim to create meaning for people, with the design ideas and concepts I develop. Enthusiasm of people, the outside world, is 12 Figure 14: Project Perspectives In the design approach the integration of the medical, psychological and design perspective is central, within the broader economic and socialethical context of the project (see Figure 14). Therefore, during the iterative design process switching actively and repeatedly between these 13 Figure 15 Stakeholder Overview, Final Master Project This overview shows the current stakeholders that are involved in the project. All stakeholders in this overview have been contacted, except “Stichting Kind & Ziekenhuis”, and experts from DQI. DQI research group design interaction expertise Health Care Design prof. dr. Loe Feijs (coach) Misha Croes, Ph.D. student Design for Children dr. Tilde Bekker prof.dr. Panos Markopoulos dr. Piet Leroy Pediatric-Intensivist & Sedationist Pedagogical Team Medical Psychologist PICU Nursing Team Sanne Nijzink, MSc Instrumental Service CliniClowns Sandra van Erp & Henk de Wit Child Psychologist dr. Renske Wassenberg Rotary Club Bussum Financial sponsoring Stiching Kind & Ziekenhuis potential promotion platform Environmental Psychologist and owner StudiodVO Fiona de Vos, Ph.D Ons Lieve Vrouwen Gasthuis pediatrician, dr. Felix Kreier 14 different perspectives is key. These perspectives are represented by different stakeholder groups, see figure 15. Therefore, the involvement of different stakeholder- and expert groups is essential, and an active manner to organize feedback, criticism and discussion (evaluation, reflection and validation) with and from the different perspectives. Furthermore, throughout the project a rational, analytical and scientific approach will be combined with an intuitive, holistic and hands-on design approach, Overall, over the course of the process, broader and quicker iterations will proceed in more specific, elaborate and in-depth iterations. In line with this, lo-fi prototyping methods will be used in the first phases of the project and proceed into high-fi prototyping methods in the final phase(s). As concrete end-results of the project I aim to produce the following deliverables: > An experiential prototype that acts as a proof of concept > A report that documents and describes the design process > A final video and series of photo’s that illustrates and explains the final design concept > A website about the design project, as platform to promote my design project to other stakeholders and communities outside the TU/e > The generation of ‘social impact’, i.e. in the form of a publication of the project in a newspaper Planning Subsequently, this design approach translates itself in the project planning, which is depicted in the self-explaining picture on the next two pages. 4.4. Design Iteration 1 The first phase of the project began with an extensive and in-depth context exploration of three weeks at Maastricht University Medical Centre. In addition, an initial literature study was done. The underlying goals of this first iteration were as follows: > Understanding the context, both the broader hospital context as the specific context of the pediatric surgery, and the various stakeholders and experts in this context > Understanding the general design question and framing the specific design question > Establishing contacts with various stakeholder and expert groups (see Figure 15) > Identification of design values and principles > Inspiration > Establishment of a theoretical framework Overall, the context exploration and initial literature study has led to a good foundation for the project, of which this proposal is a part of the first result of the knowledge that has been gathered (iteration 1). At this point in the process, the identification of the values and principles that are relevant in the context will be completed. Subsequently, these values and principles will function as the starting point for the first, broad and quick idea generation phase. This phase will be concluded with an evaluation that leads to a more specific idea and concept direction (iteration 2). 15 activities goals SEMESTER 1 weeks context exploration DESIGN ITERATION 1 first idea exploration DESIGN ITERATION 2 narrowing down DESIGN ITERATION 3 finalizing first semester EXHIBITION end of first semester _ GRIP ON DESIGN QUESTION _ UNDERSTANDING OF CONTEXT _ IDENTIFY DESIGN VALUES & PRINCIPLES _ SERIES OF INITIAL IDEAS _ DEFINING CONCEPT DIRECTION _ DEVELOPMENT BASIC CONCEPT SCENARIO _ WRAPPING UP _ REFLECTION ON REFLECTION & _ SET-UP OF THEORETICAL FRAMEWORK _ FINE-TUNING EXPECTATIONS _ FIRST EVALUATION WITH PEDIATRICINTENSIVIST DR. PIET LEROY _ IDENTIFY VARIABLES FOR EXPLORATION _ MULTIPLE EXPERT EVALUATIONS through, through, FIRST SEMESTER _ REFINE PLANNING 2ND SEMESTER through, Extensive context exploration at MUMC Contact with stakeholders and experts Literature study Analysis of and reflection on design context Idea generation and explorative sketching Expert meeting with dr. Felix Kreier (23-10) Expert evaluation Set-up professional project website 36 [37 38] 42 39 40 41 43 44 45 Reflection on previous iteration Manual and digital sketching Relating concept direction to theoretical framework Expert meeting with Fiona de Vos, Ph.D. [46 - 47] 48 48 49 SHOWCASE & ASSESSMENT through, Documentation “Final” presentations Planning Promotion of website 50 51 2 3 4 5 activities goals SEMESTER 2 weeks 16 context exploration DESIGN ITERATION 4 first idea exploration DESIGN ITERATION 5 narrowing down DESIGN ITERATION 6 finalizing first semester FINALIZING _ SET-UP SIMULATION & TEST LAB _ MULTIPLE EXPLORATIONS WITH CONCEPT VARIABLES _ DEVELOPMENT OF CONCEPT SCENARIO _ EVALUATION & VALIDATION _ IN-DEPTH AND DETAILED DEVELOPMENT OF CONCEPT SCENARIO _ EVALUATION & VALIDATION _ DEVELOPMENT FINAL CONCEPT _ DEVELOPMENT EXPERIENTIAL PROTOTYPE THAT ACTS AS A PROOF OF CONCEPT _ EXTENSIVE USER AND EXPERT EVALUATION _ FINALIZING _ EXHIBITION through, Reflection on previous iteration Lo-fi prototyping methods Preparing an ‘alternative’ evaluation method, i.e. with students or experts 6 7 8 9 [10] through, Reflection on previous iteration Medium-fi to high-fi prototyping methods Preparing alternative evaluation methods, i.e. with students or experts 11 12 13 14 through, Definition of final concept and scenario High-fi prototyping Preperation and execution of user and expert evaluations and validations 15 16 17 18 19 20 through, Final concept video and photo’s Documentation in report Generating media attention 21 22 23 end of first semester REFLECTION & SHOWCASE & ASSESSMENT 25 26 27 17 References psychopedagogical intervention programme” Patient Education and Counseling, 25(1), 17–22. 1. 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