Collaborating to improve the management of acute malnutrition worldwide Country Case Study India April 2014 www.cmamforum.org Collaborating to improve the management of acute malnutrition worldwide Country Case Study India April 2014 Acknowledgements The CMAM Forum team would like to thank Action contre la Faim and Save the Children for their collaboration in the preparation of the India country case study. We are grateful to all the people who openly shared their experiences and thoughts on the CMAM Forum during discussions and participation in the e-survey. It was encouraging to hear the enthusiastic feedback from respondents who knew about or had newly discovered the CMAM Forum and to hear how they applied knowledge obtained from the initiative in their work. Abbreviations CCS Country Case Study CMAM Community-Based Management of Acute Malnutrition FAQ Frequently Asked Questions FGD Focus Group Discussion ICT Information and Communication Technology KII Key Informant Interview M&E Monitoring and Evaluation MAM Moderate Acute Malnutrition MCH Maternal and Child Health MOH Ministry of Health NGO Non-Governmental Organization SAM Severe Acute Malnutrition Cover photograph: CMAM Forum Country Case Study: India. April 2014 1 Introduction Management of acute malnutrition is critical to reduce child mortality, particularly in high-burden areas. In 2013 an estimated 52 million children under 5 years of age were acutely malnourished, including 19 million children with severe acute malnutrition (SAM). Treatment of SAM was listed in the 2008 and 2013 Lancet Series on Maternal and Child Nutrition as a cost-effective, high-impact nutrition intervention. Community-Based Management of Acute Malnutrition (CMAM) was first piloted in 2000 and endorsed by the United Nations in 2007. CMAM interventions have been introduced in 60 countries, almost half of which are expanding service delivery, sometimes countrywide. CMAM was first implemented in emergency situations and expanded to development contexts, where it is increasingly offered as a routine child health service in high-burden areas. Despite this expansion, only 2.7 million children under 5 years of age with SAM, or 14% of the global burden received treatment in 2012, and lower treatment coverage is estimated for moderate acute malnutrition (MAM). CMAM Forum Overview The CMAM Forum was created in 2011 to support scale-up of quality services for the management of acute malnutrition by collating technical guidance, evidence and learning from the wider nutrition and health community. The CMAM Forum addresses a critical gap in management of information relevant to acute malnutrition and ensures the accessibility of up-to-date CMAM information and best practices to practitioners, policy makers, managers, trainers, researchers and donors (key actors). CMAM Forum information products include a library of policy documents, peer-reviewed articles, reviews, conference and workshop reports, guidelines, case studies, training materials, advocacy publications and updated summaries of on-going research initiatives related to acute malnutrition. The CMAM Forum also produces Technical Briefs and Frequently Asked Questions (FAQs) on priority themes to support acute malnutrition-related learning and advocacy. A Monthly Resource Update with links to new documents and events is shared with members and is available on the website. CMAM Forum services include responding to requests for information and translations, linking members through a messaging system, sharing links with discussion forums and e-learning, announcing meetings and conferences and posting their outputs. All information is available via open access, but users who become members receive updates by e-mail. India Case Study To synthesise learning about efficient and effective ways to disseminate and optimize use of information related to acute malnutrition, the CMAM Forum is conducting a series of country case studies (CCSs) in India, Kenya, Niger and Yemen. India has been selected as a case study country because it has the highest burden of acute malnutrition in the world. Moreover, there is an urgent need for evidence-based information on the management of acute malnutrition, preferably from Asian contexts, to support stakeholders with the development of adequate policy responses. 1 CMAM Forum Country Case Study: India. April 2014 2 Objectives The objectives of the India case study were to: 1. Assess how effectively CMAM Forum information products and services were disseminated to the intended audiences, how useful they were perceived to be, and how they were used or adapted to inform policy, improve services and programmes, enhance education and training and promote research, and 2. Identify opportunities for the CMAM Forum to improve its information products and services and enhance the effectiveness of information sharing and improving learning at the country level. 3 Methods The India case study combined different methods of routine monitoring of website usage for countryspecific website statistics, an e-survey of members, and key informant interviews (KIIs) over the telephone and Internet, and/or by e-mail1. A country-visit was not conducted. Key informants were selected from the list of the Nutrition Coalition and participants in the multi-stakeholder CMAM Consultation on Acute Malnutrition organized by Action contre la Faim (ACF) on February 25, 2014, and participation depended on their availability. The study indicators assessed audience (members or users, missing professions or key actors), reach (dissemination of information), usefulness (satisfaction and perceived quality of information) and use for improved health outcomes (application in work). The e-survey2 used a standardised questionnaire and the KIIs conducted with key actors at national and sub-national levels used a semi-structured questionnaire. Because the CMAM Forum provides links to relevant technical support information initiatives, questions were added about the usefulness and use of the e-learning course offered by the International Malnutrition Task Force (IMTF) and the University of Southampton. Annex 1 lists people who were interviewed. 4 Findings The India CSS provided useful insights into the effectiveness of the CMAM Forum. Below is a summary of findings related to audience, reach, usefulness and use of CMAM Forum information members and users and other key actors involved in CMAM and mother and child health and nutrition in India. Suggestions for improvements are also summarized. The findings are based on website statistics, e-survey responses from 19 out of 62 members (or 31%) at the time of the survey, and on KIIs that were held with 11 key actors involved in the management of acute malnutrition, 3 of whom were CMAM Forum members. For the eight non-members interviewed, the KII offered the opportunity to promote the CMAM Forum information products and services and the advantages of membership. 1 2 See the terms of reference: http://www.cmamforum.org/Pool/Resources/CMAM-Forum-CCS-TOR-India-2014.pdf Survey administered through email or Internet 2 CMAM Forum Country Case Study: India. April 2014 Audience At the time of reporting, there were 75 CMAM Forum members in India, representing a slight increase in members (13) since the start of the study. The 75 members form only a small part of the key actors targeted by the CMAM Forum. Members did not represent all professional affiliations and professions involved in the management of acute malnutrition. The distribution of membership by affiliation is shown in Figure 1. The larger share of international NGO membership is explained by the fact that they are supporting CMAM pilots that were underway during the CCS. Most respondents to the esurvey and participants in the KIIs were in training and education, management or policy and advocacy positions or working for an international NGO. In the multi-stakeholder CMAM Consultation on Acute Malnutrition on February 25, 2014 only 3 of the 36 participants were registered as CMAM Forum members. Figure 1: Distribution of CMAM Forum membership in India by affiliation at the start of the CCS (N = 62) 2% 1% 2% 13% 13% Government 2% IFRC/RCRC 8% Academia 1% Private Sector 1% Donors 2% Independent 10% UN 0% Other 25% NGO 8% 25% 10% 1% Reach The study assessed the reach or dissemination of the CMAM Forum information products and services according to pull (passive distribution), push (active distribution), interactive sharing and referral. Pull (passive distribution). Routine CMAM Forum website monitoring showed 3,456 visits and 1,814 page views by users based in India over a 1-year period (Table 1). There were a total of 2,889 unique IP addresses, a proxy indicator for the actual number of users if we assume that a single person used a computer (which is not the case in libraries, for example). Table 1 CMAM Forum website statistics for India in 2013 Visits Page views Total in 1 year 3,456 Total page views in 1 year 1,814 Average per day 9 Average page views per day 4 Total unique IP addresses 2,889 Average page views per visits 0.5 More than one-half (58%) of the respondents said they opened the CMAM Forum website once a month, and 42% said they opened it once a week. At the time of reporting, the India section contained 30 documents. 3 CMAM Forum Country Case Study: India. April 2014 Push (active distribution). The Monthly Resource Updates are sent to all members of the CMAM Forum in India and more than half of the respondents said they shared it with other colleagues. The updates were greatly appreciated because they provided up-to-date information related to acute malnutrition that they would otherwise have to search for. Interactive sharing of information. Respondents had not shared documents with the CMAM Forum for uploading, which was probably due to lack of awareness of this feature, or no one person taking responsibility and ownership. Some of the respondents did not know about the messaging system (37%) or the uploading function (21%). Referral. More than half (11 of 18, or 61%) of the e-survey respondents and all the KII respondents said they had shared the Monthly Resource Updates with others. About two-thirds (12 of 19, or 63%) said they had shared information downloaded from the website with others (Table 2). Table 2 Dissemination of CMAM Forum information products Source Consulted website Recommended website Downloaded information from website* Downloaded information from MRU° Shared MRU Shared downloaded information Shared information for uploading e-survey members 19/19 19/19 14/19 13/19 11/18 12/19 5/19* KII members 1/3 3/3 1/3 0/3 3/3 3/3 1/3 KII users 2/2 2/2 2/2 NA NA 1/1 0/1 NA: Not available °MRU: Monthly Resource Update *1 month prior to the survey Knowledge of website. While 42% of e-survey members had learned about the CMAM Forum through the Internet, others had learned about it through colleagues, friends or peers. Sources of information on acute malnutrition. The most frequently cited sources of CMAM information in the member e-survey were the CMAM Forum website and the CMAM Forum Monthly Resource Update, followed by the Emergency Nutrition Network (ENN) , UNICEF, Global Nutrition Cluster (GNC) and WHO websites. Knowledge of other services provided on the website. The CCS assessed awareness of the IMTF/University of Southampton e-learning course ‘Caring for Infants and Young Children with Severe Malnutrition’. Of the 14 respondents who knew about the e-learning course, 7 had found out about it through the CMAM Forum and 7 through other sources. Only 4 of the 18 respondents did not know about this course; 6 had participated in the course and found it useful, and 3 of these 6 reported that it had improved their practice. Usefulness Users and members alike perceived the CMAM Forum website, with its large library of key documents, as very useful. They appreciated having up-to-date key documents available in one place. The website was rated as user friendly by 72% (13 of 18) e-respondents, and the country tab for India was rated as useful by 55% (10 of 18), which was confirmed by the KIIs. No constraints with using the website were recorded, apart from one respondent who indicated that he or she had problems with computer or Internet access. The Monthly Resource Updates were also much appreciated. 4 CMAM Forum Country Case Study: India. April 2014 Most members and users were satisfied with the quality and relevance of the CMAM information products and services. Those who knew about the technical summaries (e.g., Technical Briefs, FAQs) rated their quality as high. Respondents unanimously rated the sources of information on the website as reliable (Table 3). The most frequently used technical summaries were the Use of MUAC and SAM and Infection. One KII respondent praised the CMAM Forum as a ‘one-stop-shop and a breakthrough; prior to the CMAM Forum’s existence information was so scattered’. All respondents recommended the CMAM Forum website to others (Table 3). Table 3 Perceived usefulness of CMAM Forum information products during the month before the survey Source Satisfied with website Aware of benefits of membership Satisfied with technical summaries Satisfied with quality of technical summaries Satisfied with relevance of technical summary topics Satisfied with knowledge gained Improved knowledge and practices Positively appraised authority, credibility, reputation e-survey members 14 of 18 NA 14 of 18 14 of 18 16 of 18 NA 17/18 18 of 18 KII respondents 4 of 4 NA 2 of 4 2 of 3 3 of 4 NA 1 of 4 2 of 4 NA: Not available In the suggestions box, one e-survey respondent wrote, “I love the CMAM Forum. As a paediatrician, it has helped me to learn the latest advances and research papers on acute malnutrition”. Another wrote “The CMAM Forum is doing excellent work in the area of malnutrition by providing the related resources comprehensively. Congratulations!” Use The CCS confirmed that those who knew about the CMAM Forum made effective use of its information products, mainly to develop training materials and adapt technical documents to the local context, but also to develop policies and guidelines. Information products adapted to the local context facilitated collaboration and developed capacity, both of which contribute to the effectiveness and efficiency of health intervention outcomes3. Examples of facilitated collaboration included guiding technical discussions on programme design and referring to evidence during technical discussions. Eighteen of 22, or 82%, respondents confirmed that they had used CMAM Forum documents to improve their knowledge and practice, and almost two-thirds (11 of 18, or 61%) said that the documents had facilitated collaboration with peers or partners. Almost all respondents (17 of 18, or 94%) said they had improved their knowledge and practice based on what they had learned through the CMAM Forum website. 3 ‘Collaboration enables partners to share ideas, leverage resources and jointly develop innovative solutions. Capacity development strengthens organizations and communities and plays a crucial role in the development of sustainable health programmes. Both are powerful tools that can mobilize individuals, organizations, communities, and government entities to solve problems faster and generate long-lasting improvements’. (USAID. Guide to monitoring and evaluating health information products and services. Washington, DC: USAID; 2007). 5 CMAM Forum Country Case Study: India. April 2014 Limitations Due to a combination of not having full contact details for all of the key stakeholders and the time constraints of others we were unable to carry out the study with the Nutrition Department of the Ministry of Health and we were unable to get better coverage of the key stakeholders in the KIIs. The participation in the e-survey and KII is very low in comparison with the Web site usage (on average 9 visits per day). However, this study may be seen as a first contact of the CMAM Forum with the country stakeholders, and this report may be a tool that will generate further interest and collaboration. Because CMAM is not implemented in India, the CMAM approach and acronym may not have been recognised. This may also have been a reason for the limited response to invitations to participate in interviews. 5 Suggestions for CMAM Forum Improvement The following suggestions for CMAM Forum improvements were collected through the e-survey and interviews and are the views of the respondents. Suggested themes for technical summaries4 • Specifications for F-100 and F-75 milk for inpatient treatment of SAM • Specifications for RUTF recipe and alternative products for use in community and their efficacy in terms of recovery of SAM children • More advocacy on CMAM as there is limited knowledge on acute malnutrition in India where weightfor-age is used as the official nutrition indicator • Logical framework template for projects or programmes on CMAM in infants and children • How to improve infant and young child feeding (IYCF) practices during treatment and after discharge in the community • How to link CMAM programming to food security • Nutritional requirements after facility-based treatment for children upon return to the community • MUAC versus weight-for-height in South Asia • Addressing MAM in South Asia • Integration of CMAM into the existing health system in South Asia • Use of antibiotics for SAM • How to design and implement CMAM interventions in urban slums. Suggested improvements in CMAM Forum information products and services Globally • Improve promotion of the CMAM Forum in conferences and workshops to increase membership • Make CMAM Forum more visible on other key websites by sharing the Web site link and announcing new CMAM Forum products • Improve the quality of video downloads 4 Note that several of the suggestions proposed by the e-survey, KII and FGD respondents had been already been posted on the CMAM Forum website, but respondents were probably not aware of this because of the language barrier or unfamiliarity with the website. Moreover, some of the proposed themes do not fall directly under the CMAM Forum mandate. 6 CMAM Forum Country Case Study: India. April 2014 • • • • • Provide support to document programme results, in order to generate more evidence Difficult for one website to cater for all, therefore develop a separate database for policy makers Provide information on how to design a study to conduct research on a CMAM programme Share information on different software available for nutritional surveys or coverage surveys Incorporate a discussion part where people can share their experiences. India • Enhance the policy developments around CMAM in India by organising study tours or field visits to another Asian country with successful CMAM integration in child health services • Promote the CMAM Forum • through the Nutrition Coalition5 which is the only nutrition coordination mechanism in India at national level and includes government • at the level of State Level Nutrition Coordination groups • during conferences and meetings and show tools provided by the CMAM Forum (e.g., slides, Monthly Resource Updates, technical summaries, fliers) • by using the international and national NGOs that are active in the field of acute malnutrition in India (ACF, Save the Children and Valid International) to promote CMAM through their networks • by linking to the recently launched Nutrition Resource Platform (NRP)6, an initiative of the Child Development and Nutrition Bureau of the Ministry of Women and Child Development (MWCD), Government of India, developed with the aim to collect, collate and make available resources and materials on nutrition and child development to diverse stakeholders http://poshan.nic.in/jspui/index.html • Raise awareness on the CMAM Forum among: • Government of India’s SAM Expert Group7 • Universities • Two influential ministry websites: Integrated Child Development Services Scheme (ICDS) http://icds.gov.in and the National Health Systems Resource Centre (NHSRC), the Knowledge Gateway to Public Health www.nhsrcindia.org • SPHERE project office in India (involved in capacity development) • National Disaster Management Centre • National Institute on Nutrition in Hyderabad • Indian Association of Paediatrics • Nutrition Society of India • Encourage professionals to share about CMAM Forum in their own personal and professional networks (snowballing) • Use Facebook to promote the CMAM Forum website as Facebook is frequently used for professional purposes in India. 5 6 7 Save the Children is the secretariat for the Nutrition Coalition and offered to share information on the CMAM Forum during their meetings. In addition to Save the Children, ACF and Valid International are actively supporting the advancement of the management of acute malnutrition in India. The Nutrition Resource Platform (NRP) targets both the general population, especially mothers and families, and nutrition professionals and policymakers. Its mandate includes: • Act as a knowledge/resource platform for nutrition and child care • Collate and provide evidence based policy advocacy • Facilitate interactive discussions, knowledge and experience sharing on nutrition and related sectors • Provide linkages to various national and international institutions and organizations • Assist in evolving a perspective plan on nutrition at State, District and Sub District Level by the Ministry of Women and Child Development and State Governments • Be a repository of resource material, researches, Information Education and Communication (IEC) and Inter Personal Communication (IPC) tools, data on nutrition and information from various sources focusing on maternal and child This small group meets approximately once per year and advises the government 7 CMAM Forum Country Case Study: India. April 2014 6 Conclusion At the time of the study, the CMAM Forum had reached only a small proportion of stakeholders involved in the management of acute malnutrition in India. However, the study observed great enthusiasm among those who were aware of the CMAM Forum. These individuals saw it as an important global and national information-sharing platform, of significant relevance to India. The study provided an opportunity to identify ways to promote use of the CMAM Forum among other stakeholders in India and generated important recommendations for reaching out further. The use of the India country section on the CMAM Forum website has great potential to support transparency and share experience and developments in acute malnutrition, many of which are little known, and are in scattered geographical locations. The collaborative characteristic of the CMAM Forum of interactive sharing of information needs to be better promoted, and its use facilitated. 7 Recommendations The following recommendations to improve information-sharing at the global and India level are deducted from the above suggestions, and are: 1. Encourage documentation of CMAM experiences in Asia and information sharing to build the evidence base 2. Explore ways to raise awareness and expand use and membership, e.g. in conferences and meetings and through online social networks 3. Provide new information products that offer practical, accessible knowledge, e.g. tools for CMAM advocacy, a logframe template for CMAM support projects, use of MUAC in Asia, integration of CMAM in health services 4. Develop and maintain online social networks (e.g., Facebook and LinkedIn) 5. Identify a national focal point for the management of acute malnutrition to link with the CMAM Forum; establish a link with key NGOs to improve awareness of the CMAM Forum initiative to facilitate the sharing of information generated in India; identify mechanisms for continuous information sharing in-country; facilitate to establish a system of information sharing, including links with relevant websites and initiatives (listed above under Suggestions) 6. Actively encourage the use of the India section for improved information sharing and transparency in the absence of a national repository for information and knowledge management on acute malnutrition. 7 This small group meets approximately once per year and advises the government 8 CMAM Forum Country Case Study: India. April 2014 Bibliography Black RE, Alderman H, Bhutta ZA, Gillespie S, Haddad L, Horton S, et al. Maternal and child nutrition: building momentum for impact. Lancet 2013; 382(9890):372–375. 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April 2014 Annex 1 People contacted for KII discussions Name of people interviewed Rita Bhatia, Technical Advisor, Valid International Harish Chand, Nutrition Advisor, World Vision India Deepika Nair Chaudhery, Programme Manager, Micronutrient Initiative Umesh Kapil, FAMS, Professor Public Health Nutrition, Human Nutrition, All India Institute of Medical Sciences Anna Motupalli, World Vision India Roselyn Mullo, Regional Nutrition Coordinator, European Commission's Humanitarian Aid and Civil Protection department Laxmikant Palo, Nutrition Coordinator, Save the Children Moumita Sarkar, Programme Manager, Terre des Hommes Foundation SheilaVir, Public Health Nutrition Consultant and Director, Public Health Nutrition and Development Centre Bhami Vora, Programme Coordinator, Fighting Hunger Foundation/Action contre la Faim Mumbai, India Unable to respond: Karanveer, Nutrition Coordinator, UNICEF India (unable to respond due to prolonged travel) DfID representative 10
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