Iowa Mental Health Conference: “The Road to Recovery” Oct 11, 2006, Ames, IA How Far Iowa Has Come How Far to Go? Michael Flaum, MD Director, Iowa Consortium for Mental Health Department of Psychiatry, University of Iowa Carver College of Medicine “Are we there yet?” z “When are we going to be there?” z “How much longer?” z “I’m hungry” z “I have to go to the bathroom” Progress over the past year in moving towards a recovery-oriented MH system? Notable Progress Over Past Year z Increased awareness of what we are talking about when we say “recovery” z Peer support z Frequency of the term heard around many tables and conferences Training academy Recreation of a Division of Mental Health and Disabilities with some $ "The introduction of recovery into our national mental health dialogue is nothing short of revolutionary." A. Kathryn Power, M.Ed. Director, Center for Mental Health Services, SAMHSA From the Carter Commission to the New Freedom Commission “The biggest change in mental health from 1978 to today is that… …we now know that recovery is possible for any individual with a mental illness.” Rosalyn Carter Changing Paradigms and Models of Mental Illness and Treatment 1950’s Asylum 1960’s De-institutionalization 1970’s Comm. Mental Health 1980’s Revolving Door 1990’s Managed Care 2000’s Recovery? Psychodynamic Bio-psychosocial Neurobiological Holistic? z Massively changing attitudes about mental illness, ideas about where care is delivered, what that care should be, how it should be paid for, who should direct care, …but… The state hospitals are still here Legal settlement is still here County care facilities are still here Sheltered workshops are still here… Etc. Funding sources for mental health programs in Iowa Source: Torrey, 1996 The President’s New Freedom Commission on Mental Health Cover Letter for the Interim Report October 29, 2002 Mental Health System Technology & Information (6) Evidence-Based Practices Training / Research (5) Mental Health & Health (1) Recovery & Resilience Consumer / Family Driven (2) Eliminate Disparities (3) Early Intervention (4) “Transforming State Mental Health Systems” z SAMHSA Regional Meeting z Chicago June 13-14, 2005 Iowa Delegation: Mary Nelson - DHS (Team Leader) Josh Mandelbaum – Office of the Governor Jim Rixner – MHDD commission Michael Flaum - ICMH Charge: Transformation in Your State Technology & Information (6) Evidence-Based Practices Training / Research (5) Mental Health & Health (1) Recovery & Resilience Consumer / Family Driven (2) Eliminate Disparities (3) Early Intervention (4) SAMHSA Consensus: 10 Fundamental Components of Mental Health Recovery z Self-Direction z Strengths-Based z Individualized and Person-Centered z Peer Support z Respect z Responsibility z Hope z z z Empowerment Holistic Non-Linear Vision Statement Iowa MHDD Redesign 2003 z “We envision a coordinated recoveryoriented mental health system where all Iowans have access to high quality, timely services and supports that facilitate their capacity to live, learn, work, recreate and otherwise optimally contribute in their chosen communities.” Goal 1 - Americans Understand that Mental Health Is Essential to Overall Health Understanding that mental health is essential to overall health is fundamental for establishing a health system that treats mental illnesses with the same urgency as it treats physical illnesses. Recommendations – Goal 1 z 1.1 Advance and implement a national campaign to reduce the stigma of seeking care and a national strategy for suicide prevention. 1.2 Address mental health with the same urgency as physical health. Goal 1: Iowans understand that MH is essential to overall health z z Indices of progress Increasing demand for services Parity bill passed Indices of work to do: Parity doesn’t work Lots of ongoing evidence of stigma Limited interaction between behavioral health and primary care States with MH Partiy Legislation (as of the year 2000) Effect of Federal and State Legislation Mandating Equal Coverage for MH z State parity mandates have not measurably increased access to mental health care or use of mental health care services. z Co-payments and deductibles for mental health benefits offered through employer-sponsored plans did not change significantly between 1995 and 2000. z Compared with the general population, individuals with mental health problems have experienced deterioration in their health insurance status and were more likely to have lost their health insurance. Source: Rand Corporation – Policy Resources for Congress, 2002 Goal 2: Mental Health Care Is Consumer and Family Driven The plan of care will be at the core of the consumer-centered, recoveryoriented mental health system. Recommendations – Goal 2 z 2.1 Develop an individualized plan of care for every adult with SMI and child with SED. z 2.2 Involve consumers and families fully in orienting the mental health system toward recovery. z 2.3 Align relevant Federal programs to improve access and accountability for mental health services. z 2.4 Create a Comprehensive State Mental Health Plan. z 2.5 Protect and enhance the rights of people with mental illnesses. Goal 2: MH care is consumer and family driven: Progress in Iowa z CINA legislation z Children’s MH Waiver z “Cash and Counseling” initiative, supported by RWJ grant and IME z Olmstead real choices work – Executive Order 27 z “Consumer as provider” training programs (e.g. Drake) z Peer Support Training Academy Iowa Peer Support Training Academy z RFP from DHS 2005 z Awarded to Outlooks, Inc. State Public Policy Group z Renewed 2006 z Georgia Model of Peer Support z Larry Fricks 4 day Training June 2006 Peer Support as a Funded Medicaid Service in Iowa z Magellan has tried this with limited success thus far (phase I) z Negotiations underway to revamp with peer specialists “certified” in the Georgia model (phase II?) z Expansion of training opportunities? Goal 2: MH care is consumer and family driven z Indices of work to do in Iowa Lack of an array of services in most places Real Choices? Lack of meaningful consumer and family input in treatment planning Lack of infrastructure on recovery-oriented services or to train workforce in concepts of consumer-driven care Goal 3 - Disparities in Mental Health Services Are Eliminated In a transformed mental health system, all Americans will share equally in the best available services and outcomes, regardless of race, gender, ethnicity, or geographic location. Recommendations – Goal 3 z 3.1 Improve access to quality care that is culturally competent. z 3.2 Improve access to quality care in rural and geographically remote areas. Goal 3: Disparities in MH services are eliminated: Indices of work to do Language barriers growing Hispanic population and shortage of Spanish-speaking MH workers Access to psychiatric services (esp. child psychiatric services) are increasingly limited Rural vs urban disparities are dramatic, e.g. Southwest Iowa Pockets of excellence amidst regions of neglect Transportation is not typically covered Current (March 2006) Supply and Demand for Psychiatrists* in Iowa Type of Practice Current Supply Psychiatry 217 197 197 63 23 23 29% 12% 12% Internal Medicine 405 43 11% Pediatrics 229 1,239 15 76 7% 6% OB/GYN General Surgery Family Medicine Current Critical Demand Demand Ratio Source: Office of Statewide and Clinical Education Programs (OSCEP) *Full time only University of Iowa Carver College of Medicine Factors driving the psychiatric shortage z z Increased demand Stigma-busting Awareness Early detection Decreased supply Role of psychiatrist as prescriber Limited interaction with clients Limited interaction with colleagues Goal 3: Disparities in MH services are eliminated: Indices of Progress z z Some use of telepsychiatry Kids through CHSC – MBC collaboration Prisons Elsewhere $ for MH training for “mid levels” Goal 3: Disparities in MH services are eliminated: Indices of Progress z Efforts to transform legal settlement z Enhanced coverage for brain injury services z Efforts and $ towards standardized functional assessment and outcomes Goal 4 - Early Mental Health Screening, Assessment, and Referral to Services Are Common Practice For consumers of all ages, early detection, assessment, and links with treatment and supports will help prevent mental health problems from worsening. Recommendations – Goal 4 z 4.1 Promote the mental health of young children. z 4.2 Improve and expand school mental health programs. z 4.3 Screen for co-occurring mental and substance use disorders and link with integrated treatment strategies. z 4.4 Screen for mental disorders in primary health care, across the lifespan, and connect to treatment and supports. Goal 4: Early MH screening, assessment and referral to services are common practice: Progress z Early childhood ABCD initiative z Systems of Care grant in NE Iowa z SAMSHA “Policy Academy” for Cooccurring Disorders z Block Grant funding IDDT school-based programs Primary care / MH programs Goal 4: Indices of work to do z z Ongoing barriers to meaningful integration and cooperation of MH services with: Substance abuse Primary Care Schools Vocational Services Barriers include administration, funding, information sharing, location, training, culture, etc. Goal 5 - Excellent Mental Health Care Is Delivered and Research Is Accelerated Research discoveries will become routinely available at the community level. Recommendations – Goal 5 z 5.1 Accelerate research to promote recovery and resilience, and ultimately to cure and prevent mental illnesses. z 5.2 Advance evidence-based practices using dissemination and demonstration projects and create a public-private partnership to guide their implementation. z 5.3 Improve and expand the workforce providing evidence-based mental health services and supports. z Develop the knowledge base in four understudied areas: mental health disparities, long-term effects of medications, trauma, and acute care Goal 5: Excellent Mental Health Care is Delivered and Research is Accelerated: Indices of Progress z EPB legislation of 2004 z z Block grant spending MBC promoting evidence-based practices Expansion of ACT EBP grants Emerging infrastructure for technical assistance for EBP’s Block Grant Funded Programs z 40 agencies 39 programs for adults with SMI 40 programs for children with SED z FY 2006 z FY 2007 Themes of Iowa Block Grant funded Programs 2005-2006 Adult Programs Child Programs z Recovery Oriented z School Based z Integrated MH and SA treatment z Intensive Home and Community Based z Other z Other Iowa Mental Health Block Grant Funds (FY 2007) z 18 of 39 adult programs are “recovery oriented” z 9 programs: Illness Management and Recovery program z a la SAMHSA Resource Kits Others: Recovery Centers Some focusing on WRAP model Goal 5 – Indices of work to do z Capacity to assess fidelity remains very limited z Supervision and ongoing learning is undervalued and under-supported z ACT is still limited and not a required services in state plan z Supported employment markedly underutilized County Funding for Employment Services Statewide 2005 Sh el te re d W W or or k ks Ac ho t iv p it y Se rv ice Jo s b Pl ac em Ad en ul t Su t D pp ay or Ca te d re Em pl oy m O en th t er Vo En ca cla tio ve na lS er vic es $1,600,000 $1,400,000 $1,200,000 $1,000,000 $800,000 $600,000 $400,000 $200,000 $0 MI CMI Goal 6 - Technology Is Used to Access Mental Health Care and Information The privacy of personal health information - especially in the case of mental illnesses will be strongly protected and controlled by consumers and families. Recommendations – Goal 6 z 6.1 Use health technology and telehealth to improve access and coordination of mental health care, especially for Americans in remote areas or in underserved populations. z 6.2 Develop and implement integrated electronic health record and personal health information systems. Goal 6: Technology is used to access MH care and information z z Indices of progress Some small telemedicine initiatives Administrative rule that allows DHS to get identifying data from counties and institutions Indices of work to do Reimbursement for telehealth Ongoing stigma about MH information as distinct Lack of resources for data infrastructure Collection, analysis and feedback The Evidence Based Practice Cycle Quantify Priority Outcomes Regularly Specify Core Components of Practice Optimize Priority Outcomes Modify Core Components of Practice Review Outcomes Regularly Building Consensus “Recovery must be the common, recognized outcome of the services we support” Charles G. Curie, M.A., A.C.S.W. Director, SAMHSA National Outcome Measures (NOMs) z Employment / Education z Perception of Care z Housing stability z Access / Capacity z Crime / Criminal justice z z Social connectedness Decreased hospitalization z Cost effectiveness z Use of EBP’s z Decreased symptoms “Recovery – Oriented” Outcomes “…a decent job, a place called home and a date on Saturday night…” Charles G. Curie (former SAMHSA director) “Knowing is not enough, we must apply. Willing is not enough, we must do.” - Goethe What can providers do? z Meaningfully involve consumers in oversight and planning z Hire consumer educators z Attend to language and covert messages z Ongoing assessment of recovery-orientation z Establish attainable goals z Pursue continuous quality improvement What can consumers do? z Self advocacy Be an informed consumer Internet literacy Establish relationships with legislators Organize Don’t fight among yourselves Establish goals Pursue your own recovery in an evidencebased manner What can administrative and community leaders do? z Pursue meaningful partnerships School systems Criminal justice Vocational rehabilitation Chambers of commerce Primary care Substance abuse service system What can the University do? z Support conferences like this z Start a Division of Community Psychiatry Training at all levels Development of meaningful partnerships Outreach, consultation, telemedicine Informing mental health policy Integrating recovery and evidence-based practice “Transformation” z A conversion, revolution, makeover, alteration or renovation z An act, process or instance of change in structure appearance or character. Webster’s Dictionary Contact Info / Website z Michael Flaum, MD z 319-353-4340 z [email protected] z www.icmentalhealth.org (Put “Iowa consortium mental health” in search engine)
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