Dr.med. Ivan Foeldvari
Hamburger Zentrum für Kinder- und Jugendrheumatologie
Kompetenz-Zentrum für Sklerodermie im Kindesalter
Kompetenz Zentrum für autoimmune Uveitis im Kindesalter
Schön Klinik Eilbek , Dehnhaide 120, D-22081 Hamburg , Germany
Tel: +4940-2092-3694 ; Fax: +4940-2092-3693
E-Mail: [email protected]
Homepage:www.kinderrheumatologie.de//www.sklerodermie.org // www.uveitis-kindesalter.de
8. Hamburg Symposium on juvenile Scleroderma - update on new developments
Date: December 5 th 2015, 10.00-18.30
Location: Schön Klinik Eilbek, Haus 7, Dehnhaide 120, 22081 Hamburg, Germany
Program
10.-10.10
Introduction – Dr. Ivan Foeldvari
10.10.-10.45 Cutenaous presentation of localised Scleroderma- “setting the scene”
– Peter Höger, Pediatric Dermatologist Hamburg
10.45-11.30 How to assess activity of cutaneous disease- development , validation
of LoScat.. Kathy Torok, Pediatric Rheumatologist , Pittsburgh , USA
Coffe break
12.00-13.30
How to assess activity of cutaneous disease
a, Ultrasound – Dr. Opitz, Radiologist , Hamburg
b, Durometer -Kathy Torok / Ivan Foeldvari
c, Thermography -Leser Doppler - NN
Lunch break
14.00-14.30
14.30-15.00
15.00-16.00
Extracutaneous manifestation of localised Scelorederma- do we miss
something? – Antonia Kienast / Ivan Foeldvari – Pediatric
Rheumatologist Hamburg, Germany
Quality of life instruments in localised Scleroderma – Eileen Baildem,
Pediatric Rheumatologist, Liverpool, UK
Do we need a revision of our proposal for diagnosis and treatment of
localised Scleroderma – Tamas Constantin, Budapest, Hungary
Coffee break
16.00-16.20
16.20-17.20
Proposal of for a multicenter Registry for localised Scleroderma- Ivan
Foeldvari /Antonia Kienast
Proposal for a composite outcome measeure for localised scleroderma
17.20-17.30
Closing Remarks: Ivan Foeldvari
Organisation: Ivan Foeldvari
REGISTRATION BY Email: [email protected] The meeting received unrestricted support from : Abbvie, MSD, Novartis