programma

New Therapies for Rare Disease: Terapia Radiometabolica Recettoriale nei tumori neuroendocrini
Sessione 1: politiche istituzioni e strumenti finanziari in ambito sanitario
Time
Speaker
Institution
Title
Country
14:30
Dino Amadori Giovanni
Paganelli
Gaetano Guglielmi
IRST IRCCS
Proponente
Head Office 3 Health
Research - General
Directorate for Health and
Biomedical Research and
Health Research Institutions'
Supervision - Ministry of
Health ITALY
Welcome and Conference
Outline
The leverage effect of
National funds
ITALY
15:30
Domenica Taruscio
Paola Torreri
Antonio Addis
E-RARE: ERA-net for research
programmes on rare
diseases
ERA-Net for Research
Programmes on Rare
Diseases E-RARE- the role of
ASSR
ITALY
15:00
15:15
Elisa Rozzi
Matteo Volta
National Centre for Rare
Diseases, Istituto superiore di
Sanità
Research Governance
Coordinator, Agenzia
Sanitaria e Sociale Regionale
(ASSR) Emilia Romagna
Region
Emilia Romagna Region
(Health Agencies Delegates)
ITALY
15:45
Luca Sangiorgi
Rizzoli Orthopaedic Institute
(IOR)
16:00
DG SANCO DELEGATE
To be confirmed
16:15
DELEGATE from Progetto
Mattone Internazionale
To be confirmed
Rare diseases and rare
tumors in Emilia-Romagna
Region
ERIC European
Infrastructures: BBMRI,
EATRIS, ECRIN
Rare diseases and cancer on
Horizon Priorities
Progetto Mattone
Internazionale support to
tematic workshop
15:45
16:30 coffee break
ITALY
ITALY
ITALY
BE
ITALY
Sessione 2 contenuti metodologici e risultati attesi nel piano di lavoro
Time
16:45
Speaker
Giovanni Paganelli
Institution
IRST IRCCS, Meldola
Title
Moderator
Country
ITALY
16:55
Roberta Centonze
Consultant
ITALY
17:05
Angela Angelastro
17:15
Lia Ceccarelli
17:30
Lisa Bodei
Agenzia Nazionale dei Servizi
Sanitari Regionali (AGENAS)
Associazione Italiana Pazienti
con tumori neuroendocrini,
NET
IEO, Milan
Introduction to the Health
topic PHC14
AGENAS support for local
initiatives of global interest
The patient’ needs
ITALY
17:45
Andreas Kjaer; Giovanni
Paganelli
National University Hospital
& University of Copenhagen
PRRT in EU: economic,
logistic & political aspects
FDG and NEns
18:00
18:15
18:30
Irene Virgolini
Tony Ibrahim
Giovanni Paganelli
University Innsbruck
IRST IRCCS, Meldola
IRST IRCCS, Meldola
AUSTRIA
ITALY
ITALY
18.4519-30
Everybody:
Otto Boerman; Jhon
Buscombe;
Irene Virgolini; Ozlem
Kucuk; Lia
Ceccarelli;Giovanni
Paganelli; Toni Ibrahim;
Lisa Bodei; A. Kjaer;
R.Baum, A Versari
Research Institute for
Oncology, Nijmegen;
Cambridge University
Hospitals; Medical University
Innsbruck; Ankara University
Medical School; NET Italy;
IRST IRCSS; IEO; University of
Copenhagen; Arcispedale S.
Maria Nuova IRCCS
The ideal peptide
Capecitabine and NETs
The Lu-PET protocol:
Rationale & study design
Round table
20:00 dinner
ITALY
ITALY
DENMARK
ITALY;
DENMARK;
GERMANY;
THE
NETHERLAN
D; UK;
AUSTRIA;TU
RKEY
5 Luglio 2014: Sessione 3: lista delle attività e GANTT
Time
9:30
Speaker
Giovanni Paganelli
10.00
Roberta Centonze
10:15
Everybody:
Otto Boerman; Jhon
Buscombe;
Irene Virgolini; Ozlem
Kucuk; Lia
Ceccarelli;Giovanni
Paganelli; Toni
Ibrahim; Lisa Bodei;
A. Kjaer; R.Baum; A
Versari
Roberta Centonze
Paola Burioli
10:45
Institution
IRST IRCCS
Proponente
Consultant
Research Institute for Oncology,
Nijmegen; Cambridge University
Hospitals; Medical University
Innsbruck; Ankara University
Medical School; NET Italy; IRST
IRCSS; IEO; University of
Copenhagen; Arcispedale S.
Maria Nuova IRCCS
Title
Welcome and briefing on the
work done
Activity list and GANTT
templates guidelines
Templates filling
Country
ITALY
Templates reading and
discussion
ITALY
ITALY
ITALY;
DENMARK;
GERMANY;
THE
NETHERLAN
D; UK;
AUSTRIA;
TURKEY
11:00 coffee break
Sessione: 4 budget outline
Time
11:45
12.00
12:15
12:45
13:00
Speaker
Roberta Centonze
Paola Burioli
Roberta Centonze
Everybody:
Otto Boerman; Jhon
Buscombe;
Irene Virgolini; Ozlem
Kucuk; Lia
Ceccarelli;Giovanni
Paganelli; Toni
Ibrahim; Lisa Bodei;
A. Kjaer; R.Baum
A Versari
Roberta Centonze
Paola Burioli
Giovanni Paganelli
Institution
Consultant
Research Institute for Oncology,
Nijmegen; Cambridge University
Hospitals; Medical University
Innsbruck; Ankara University
Medical School; NET Italy; IRST
IRCSS; IEO; University of
Copenhagen; Arcispedale S.
Maria Nuova IRCCS
13:30 Light lunch
Title
Harmonisation of the
activities and timetable
Budget templates guidelines
Templates filling
Country
ITALY
Templates reading and
discussion
Conclusions and homework
distribution
ITALY
ITALY
All (see
above)
ITALY

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