Download Agenda - Cutaneous Lymphoma Foundation

Learn!
Connect!
Celebrate!
2-Day
Cutaneous Lymphoma
Patient Conference
The Cutaneous Lymphoma Foundation
June 28-29, 2014  Kansas City, MO
PROGRAM AGENDA
Saturday, June 28
9:00 am
Welcome and Cutaneous Lymphoma Foundation Update
Susan Thornton, CEO, Cutaneous Lymphoma Foundation, CTCL Patient
9:30 am
Cutaneous Lymphoma Overview
Daniel Aires, MD, JD, Division Director, Dermatology, University of Kansas Medical Center
10:00 am
Diagnosis and Staging
Steve Horwitz, MD, Medical Oncologist, Memorial-Sloan Kettering Cancer Center; Board Member,
Cutaneous Lymphoma Foundation
10:30 am
Break
11:00 am
Pathology of Cutaneous Lymphoma
Garth Fraga MD, Associate Professor, University of Kansas Medical Center
11:30 am
Treatments
Lauren Pinter-Brown, MD, FACP, Clinical Professor, Department of Medicine, Hematology/Oncology,
UCLA Jonsson Comprehensive Cancer Center; Board Member, Cutaneous Lymphoma Foundation; and
Sunil Abhyankar, MD, Professor of Medicine and Pediatrics, Director, BMT Phoresis & Cell Processing,
University of Kansas Medical Center
12:00 pm
Lunch
1:00 pm Research Update and Biomarkers
Christiane Querfeld, MD, Co-Principal Investigator, Dermatology, Dermapathology, Memorial SloanKettering Cancer Center
1:30 pm
Patient Story
Gary Robinson
2:00 pm
Physician Roundtables (Breakout Rooms)
• Indolent/Skin Only Diagnosis (MF, LyP) with Stuart Lessin, MD, Medical Director of KGL Skin
Study Center, Board Member, Cutaneous Lymphoma Foundation; and Daniel Aires, MD
• Aggressive/Systemic Diagnosis (SS, transformed MF) with Lauren Pinter-Brown, MD, FACP;
Sunil Abhyankar, MD; and Marianne Tawa, RN, MSN, ANP, Nurse Practitioner, Dermatology
and Cutaneous Oncology, Dana Farber Cancer Institute; Board Member, Cutaneous Lymphoma
Foundation
2:30 pm
Break
2:45 pm
Clinical Trials - The Nursing Perspective
Marianne Tawa, RN, MSN, ANP
3:15 pm
Patient Perspective on Clinical Trials
William Fowler
3:30 pm
Patient Panel
CLF Board Members: Laurel Carlson, Joe Eichens, Christopher Shipp, David Lamb
4:00 pm
Keynote Presentation: Living Your Best Life
Susan Thornton, CEO
5:00 pm
Cocktail Reception & Silent Auction
PROGRAM AGENDA
Sunday, June 29
9:00 am
Keynote Presentation
Donna Hussey, Author, CTCL Patient
10:00 am
Skin Care Solutions
Oleg Akilov, MD, PhD, Department of Dermatology, University of Pittsburgh
11:30 am Lunch
12:30 pm
Facing Medical Debt Crisis: Insurance, Benefits, Resources
Brendan Bietry, Director of External Relations/Bilingual Case Manager, Patient Advocate Foundation
1:00 pm
Living With Cutaneous Lymphoma
Leora Lowenthal, MSW, Social Worker, CTCL Patient
1:30 pm
Patient and Caregiver Roundtable Discussions
• Early Stage/Stable Disease
• Aggressive/Later Stage Disease
• Young Patient Experience
2:30 pm
Patient Story
Danna Wessels
3:00 pm
Closing Remarks
Susan Thornton, CEO
COCKTAIL RECEPTION AND
SILENT AUCTION
MEALS
Join us for
• Continental breakfast served on Saturday
and Sunday from 8:00 am - 9:00 am.
the Cutaneous Lymphoma Foundation’s
Cocktail Reception
• Lunch will be served on Saturday and
Sunday.
and
Silent Auction
• Snacks served during breaks on Saturday
and Sunday.
Saturday Evening
5:00 pm - 7:30 pm
• Hors d’oeuvres will be served Saturday
evening at the cocktail reception.
Hors d’oeuvres will be served
Open Bar from 5:00 - 6:00 pm
Cash Bar after 6:00 pm
Thank you!
Thank you for attending the Cutaneous Lymphoma Foundation’s second Annual 2-Day Patient Conference!
We hope you will feel empowered and better equipped to live your best life.
Cutaneous Lymphoma Foundation’s 2014 Fall Events
September 13: Montreal, QC, Canada
Cutaneous Lymphoma Foundation
Patient Educational Forum
September 27: Milwaukee, WI
Cutaneous Lymphoma Foundation
Patient Educational Forum
October 19: Denver, CO
Cutaneous Lymphoma Foundation
Patient Educational Forum
November 15: Fort Lauderdale, FL
Cutaneous Lymphoma Foundation
Patient Educational Forum
Collaborative Events With the Lymphoma Research Foundation
October 24 - 26: Manhattan Beach, CA
North American Educational Forum on Lymphoma
For more information and to register for these FREE events,visit www.clfoundation.org or call (248)644-9014
While unlikely, dates and cities may be subject to change.
2-Day Cutaneous Lymphoma Patient Conference
Supporters
PO Box 374  Birmingham, MI 48012
Phone: 248.644.9014  Email: [email protected]
www.clfoundation.org

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