First 2014 Sunbeam House Trust Killarney Roacir Co. Wicklow Road Back cover: The PB Print Solution, Dublin, !SBN Martin McNamara, Sean of Foreword Preface Some sweet country home delicate Sunbeam House, the times: from tuberculosis child Part 2 5 House and intellectual in nest: Schools stable: Vocational and Introduction to 3 services, 1976-1980 103 1981-2013 strategy Ethos, mission Notes vision: Sunbeam Services, present and future Acknowledgements Foreword The book was made possible through a grant provided jointly by the Trustees of Sunbeam House Trust and the Board of Directors of Sunbeam House Services. The authors are grateful for the support the project received from these bodies. We acknowledge, in particulm~ the vision and foresight of John Giles in commissioning the book and, in so doing, ensuring that the history and achievements of Sunbeam House Services and its antecedentorganisations are recorded. Mr Giles's support, guidance and advice in the course of researching the book proved invaluable. We are also grateful to George Knaggs, John Hannigan and Donal O'Brien for providing critical con<ments on the penultimate draft of the book manuscript The title of this book is Equal Citizens. This title has a lot to say about the book's contents, insofar as it is about the history and development of a project that arose out of a Victorian shipping tragedy on a Swiss lake in the late nineteenth century involving a Victorian lady, a project which is continuing up to the present day. Out of the disaster came the inspiration to care for people whom Victorian society hardly recognised and to whom they offered no status as citizen. This same idea informs the work of the organisation right up to the present time, when the people for whom it now cares are considered 'equal citizens'. The narrative of the later chapters of this book is informed by oral testimonies provided by current and former clients of Sunbeam House. Vve very much appreciate their generosity in sharing with us their experiences of growing up in Sunbeam House. We also gratefully acknowledge the contribution of current and retired staff and members of the Board of Directors and the Management Team, who participated in individual interviews and/ or in a focus group discussion. We extend a particular note of gratitw.le to Canon Robert Jennings for providing the oral testimony on which part of Chapter 6 is based. Much of the book is based on documentary materials available in the archives of Sunbeam House and we acknowledge with thanks the support provided Ruth Eagar and Delwen Giles in accessing them. Assistance with the preparation images for the book was provided by Audrey Drohan, UCD Library, and Brian Manning, Sunbeam House Services. Ruth Eagar was also instrumental in selecting images and assisting with important project management arrangements in advance of publication and her assistance and support is gratefully appreciated. The authors also gratefully acknowledge Daniela Rohde who undertook proof reading of the manuscript The book was informed a published history of Sunbeam House Services, entitled Sunbeam House Bray and written by Francis Loughrey (with additional chapters by Maria Luddy and John Giles); the authors acknowledge the importance of this earlier work when researching and writing the book So what value did the Trustees of Sunbeam House Trust and the Directors of Sunbeam House Services see in commissioning this book? Firstly, they believed that the story is worth teliing. lt is worth telling because those Victorians who originally founded an organisation to care for 'crippled children' led by example and those that followed in building the organisation that became Sunbeam House provided an exemplar to society of what should be done to care for those among its citizens who are disadvantaged physically or intellectually Secondly, they believed that the story of Sunbeam House is the story of an organisation in context, an organisation that, at once, could respond to wider societal changes, be proactive in anticipating changes, and lead changes when leadership was needed. As society has developed over the last hundred and forty years, much has improved for the ordinary citizen, but reason of disability, many citizens find themselves 'un-equal' citizens in this process of improvement This story is about people and an organisation that contributed, in a small part, to making those who were once "unequal", become Equal Citizens. This book is not merely an account of a few dedicated people's project to improve the Jot of society's disadvantaged people, but how that motivation fitted into the emergence within society of policies to serve the needs of it disadvantaged Citizens. The book is written by people who themselves are part of the development and delivery of social and health care in our country, and who want to show from past experience and present practice just what can be done to change the quality of life of young and older people and their families. ARGiles Co. Wicklow May 2014 Fore,word on Lake Zurich on 29 August 1872 and her narrow accident led a young woman, life to the alleviation of human suffering, the way of work and the end for which """"nro•rn funding from a wide cross section of Children in Bray, Sunbeam House Services is one of the Ireland, As the of intellectual disabilitv services for residential, educational, uallHiH);, support services over 350 adults with Sunbeam House Services reflects the with an intellectual and often innovative services and service in the field of intellectual founded in 1874 as the Home Lucinda Sullivan who, at the Adelaide Described as a of how the rickets, tuberculosis VVhen exposure to and fresh air became and diseases like rickets in the inter-war years, a sunlight for and became Sunbeam House, However, with the decline in tuberculosis and diseases associated vvith poor nutrition in the 1950s, Sunbeam House once to of childhood diseases and its function to become a children's home and a welfare home for children, Sunbeam House remained an With the !rish state's historic reliance on need to disabled and, in the case of Su.nheam House, at that time. When it became "r"''"'"'n to the authorities at Sunbeam House in the mid-19'70s that there were few for school service, This necessitated a established an of the traditional Sunbeam House, business model. Over the next four decades, this professional develop a range of direct and support services and, in the process, contributed to the development of a picture in which the majority of people with an intellectual into their cmnmunity. home in Bray, County Wicklow, established for crippled a major public business enterprise providing a countyservice? This book endeavours to tell this story. The book of an organisation in context, a care home providing in response to changing patterns of childhood illness organisation in the Protestant philanthropic tradition and, organisation. The book shows how the organisation shifting external circumstances, changing its core function · and ethos. It offers a case study of the evolving state and the small voluntary organisations on which it health and welfare services. lt shows how a voluntary and in consort with the state, endeavoured to meet virtue of their disabilities, fell outside mainstream services The book also shows how a professional business model in a service organisation while remaining true to which was founded by a sense of Christian duty, the essential ethos of voluntarism and public service. ters and is structured in three parts. Part 1 (chapters the period 1874 to 1958, when Sunbeam House cared for with tuberculosis and, later, convalescent and orphaned examines the historical development of Sunbeam House disability services after the late 1950s up to the early (chapters 10-11) examines the development of Sunbeam with a particular focus on its emerging governance as it moved from being a small voluntary home to a The two chapters in Part 3 also examine the ways trctteg1c:al!ly positioned itself as both a responsive and. a face of local needs and emerging challenges in the wider sources contained in the archives of Sunbeam House of staff and service users, the book is thoroughly a chronological narrative of key developments in the on the history of the wider disability discourses and welfare and disability policies in Ireland., the narrative House responded to these wider developments and, to the development of policy and practice in disability About the authors Dr Gerard Fealy Gerard Fealy is Associate Professor and Associate Dean for Research and Irmovation at the UCD School of Nursing, Midwifery and Health Systems. He is a UCD graduate with a bachelor's degree in nursing, a master's degree in education and a PhD in education. Completed in 2003, his doctoral thesis examined the history of nurse training in Ireland. Dr Fealy is founding Director of the UCD Irish Centre for Nursing and Midwifery History and is the author of several scholarly articles and historical monographs, including A History ofApprenticeship Nurse Training in Ireland (Routledge 2006) and The Hospital School of Nursing, 1859-2009 (Columba Press 2009). He teaches the social history of Irish healthcare. Dr Martin McNamara Martin McNamara is Dean of Nursing at UCD and Head of the UCD School of Nursing, Midwifery and Health Systems. A registered psychiatric and general nurse, he holds a bachelor's degree in health sciences and master's degrees in social science, education and nursing. In 2007 he obtained a Doctor of Education (EdD) degree from the Open University. Dr McNamara is a writer and commentator on professional nursing, with a particular interest in academic identity, disciplinary development and the history of the profession. He is a co-founder of the UCD Irish Centre for Nursing and Midwifery and identity. has published several scholarly articles on aspects of nursing history and History professional Dr Sean Lucey Sean Lucey is a historian of healthcare and welfare with expertise in the history of medical and poor relief and hospital provision. He obtained a PhD from NUl Maynooth for work on the land movement in late nineteenth-century and he previously held research fellowships at Trinity College Dublin and Oxford Brookes University. He is currently a Research Fellow at Queen's University Belfast, writing a monograph on poverty and public health in Belfast and its environs during the period 1898-1973. Dr Lucey has published several scholarly articles and books, including Land, Politics and Violence in Late Nineteenth Centun; Ireland (UCD Press, 2011), Jhe Irish National League in Dingle, County Kerry, 1882-92 (Four Courts Press, 2003) and From Poor Law to Free State: Poverty, Manchester University Press). Poor mzd Medical Relief in Ireland, 1910- 39 (Forthcoming:
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