Qualitative Cancer Research: Taking Stock, Stepping Further th th April 28 - 29 , 2014, Berlin School of Public Health, Charité Universitätsmedizin Berlin, Germany Preliminary programme outline and timings DAY ONE MONDAY, April 28th, 2014 8 45-9 00 Arrival 9 00-9 10 Welcome to Conference Jacqueline Mueller-Nordhorn Berlin School of Public Health, Charité, Berlin, Germany 9 10-9 30 Introducing the Qualitative Research Group on Cancer Susanne Brandner Berlin School of Public Health, Charité, Berlin, Germany 9 30-10 00 Introduction: Qualitative Cancer Research Christine Holmberg Berlin School of Public Health, Charité, Berlin, Germany 10 00-11 00 Keynote Presentation Why strive for solidarity in qualitative cancer research? Discussing the case of 'patient delay' in healthcare seeking Rikke Sand Andersen Department of Public Health – Forskningsenheden for Almen Praksis and Department of Culture and Society – Section for Anthropology and Ethnography; University of Aarhus, Denmark 11 00-11 30 Coffee Break 11 30-1 00 Session A: EXPLORING CANCER EXPERIENCES Chair: Yvonne Adam, Support: Sarah Blakeslee Berlin School of Public Health, Charité, Berlin, Germany 11:30-12:00 Young women coping with breast cancer. The cases of Belgium, France and Italy in a comparative perspective Cinzia Greco1, Grazia De Michele2 and Natasia Hamarat3 1 Écoles des Hautes Études en Sciences Sociales/CERMES3, France University of Reading, UK; Breast Cancer Advocate/Blogger 3 Metices – Université libre de Bruxelles 2 12:00-12:30 Experiencing life after cancer in Puerto Rico: findings from a qualitative study on survivorship Karen E. Dyer Department of Social and Behavioral Health, School of Medicine, Virginia Commonwealth University, Richmond, U.S.A. 1 Qualitative Cancer Research: Taking Stock, Stepping Further th th April 28 - 29 , 2014, Berlin School of Public Health, Charité Universitätsmedizin Berlin, Germany 12:30-1:00 “Staying independent”: a qualitative study to explore the experiences of cancer patients living alone during their treatment Charlotte Benoot1, Reginald Deschepper1, Maria Grypdonck2, Johan Bilsen1 1 Department of Public Health, Vrije Universiteit Brussel, Belgium Department of Nursing Sciences , University Hospital, Ghent, Belgium 2 1 00-2 00 Lunch Break 2 00-3 00 Session B: NAVIGATING PREVENTION AND TREATMENT Chair: Sarah Blakeslee Support: Wiebke Stritter Berlin School of Public Health, Charité, Berlin, Germany 2 00-2 30 Coming to decisions about cancer treatment: Understanding the processes among older men and women with colorectal cancer Fay J. Strohschein1,2, Rita S. Schreiber3, Joan L. Bottorff4, Francine Ducharme5, Howard Bergman6, Carmen G. Loiselle1,2 1 Ingram School of Nursing, McGill University, Montreal, Canada Segal Cancer Center and Lady Davis Research Institute, Jewish General Hospital, Montreal, Canada 3 School of Nursing, University of Victoria, Victoria, Canada 4 School of Nursing, University of British Columbia, Canada 5 Faculté des sciences infirmières, Université de Montréal, Montreal, Canada 6 Department of Family Medicine, McGill University, Montreal, Canada 2 2 30-3 00 Negotiating risks and responsibilities: A critical narrative study of parents’ decision-making about human papillomavirus (HPV) vaccination Jessica Polzer Department of Women’s Studies and Feminist Research and School of Health Studies, The University of Western Ontario, London, Canada 3 00-3 30 Coffee Break 3 30-4 30 Session C: CHRONIC ILLNESS AND SURVIVORSHIP Chair: Jennifer Kennedy Support: Wiebke Stritter Berlin School of Public Health, Charité, Berlin, Germany 3 30-4 00 Meeting the needs of black and minority ethnic breast cancer patients during early survivorship: what can we learn from qualitative interviews conducted with a multi ethnic sample in England? Charlotte N.E. Tompkins1, Jo Armes2, Seeromanie Harding3, Emma Ream2, Karen Scanlon1 1 Breast Cancer Care, London, UK Florence Nightingale School of Nursing & Midwifery, King's College London, UK 3 Ethnicity and Health Research Programme, Medical Research Council, Social and Public Health Sciences Unit, University of Glasgow, UK 2 2 Qualitative Cancer Research: Taking Stock, Stepping Further th th April 28 - 29 , 2014, Berlin School of Public Health, Charité Universitätsmedizin Berlin, Germany 4 00-4 30 Chronic cancer treatment and healthcare configurations: a qualitative investigation Valérie Buthion1, Nora Moumjid2, Jennifer Margier3 1 Lyon 2 University, COACTIS EA 4161, Lyon, France Lyon 1 University, GATE-LSE (UMR 5824 CNRS,) Centre Léon Bérard, Lyon, France 3 Lyon 1 University, GATE-LSE (UMR 5824 CNRS), Grenoble University Hospital, France 2 4:30-5:30 Final Discussion Chair: Yvonne Adam, Sarah Blakeslee & Susanne Brandner Berlin School of Public Health, Charité, Berlin, Germany 7:30 Get Together, place: tba 3 Qualitative Cancer Research: Taking Stock, Stepping Further th th April 28 - 29 , 2014, Berlin School of Public Health, Charité Universitätsmedizin Berlin, Germany DAY TWO TUESDAY, April 29th, 2014 9:00-10:30 Session D: INSTITUTIONALISING CANCER Chair: Wiebke Stritter Support: Susanne Brandner Berlin School of Public Health, Charité, Berlin, Germany 09:00-9:30 Complexities, complications and competencies. Physicians’ views on the interdisciplinary treatment of urological cancer in Germany Denny Chakkalakal Berlin School of Public Health, Charité, Berlin, Germany 09:30-10:00 A qualitative study of the views of researchers on the definitions, issues and evaluation of translational research in oncology Frédérique Thonon1,2,3, Mahasti Saghatchian1, Rym Boulkedid2, Serge Gottot2, Corinne Alberti2, 3 1 European and International affairs, Gustave Roussy, Paris, France Unité d’épidemiologie Clinique, Hôpital Robert Debré, Paris, France 3 Université Pierre et Marie Curie, Paris, France 2 10:00-10:30 Public participation in Oncologic Drug Evaluation Loes Knaapen Public Health Research Institute, University of Montreal (IRSPUM), Canada 10:30-11:00 Coffee Break 11:00-12:30 Session E: CANCER KNOWLEDGE UNDER CONSTRUCTION, PART 1 Chair: Martin Schultze Support: Denny Chakkalakal Berlin School of Public Health, Charité, Berlin, Germany 11:00-11:30 Caught between hopes and fears: the construction of hope in a cancer trial Sabine de Graaf University of Amsterdam, Amsterdam, Netherlands 11:30-12:00 The illusion of control in the global flow of breast cancer awareness campaigns Margret Jäger1, Kathryn Bouskill2 1 Department of Public Health and Health Technology Assessment, Private Universität für Gesundheitswissenschaften, Medizinische Informatik und Technik; UMIT Wien, Austria 2 Emory University/Atlanta, UMIT, U.S.A. 4 Qualitative Cancer Research: Taking Stock, Stepping Further th th April 28 - 29 , 2014, Berlin School of Public Health, Charité Universitätsmedizin Berlin, Germany 12:00-12:30 HPV vaccination discourses: Impact on Canadian girls’ bodies and subjectivities Luisa Molino1, Geneviève Rail1, Caroline Fusco2 1 Simone de Beauvoir Institute; Concordia University, Montreal, Canada University of Toronto, Toronto, Canada 2 12:30-1:30 Lunch Break 1:30-3:00 Session F: CANCER KNOWLEDGE UNDER CONSTRUCTION, PART II Chair: Denny Chakkalakal Support: Jennifer Kennedy Berlin School of Public Health, Charité, Berlin, Germany 1:30-2:00 Queering qualitative cancer research: cancer’s margins, knowledge and subjectivities Geneviève Rail1, Mary Bryson2, Tae Hart3,Jacqueline Gahagan4, Janice Ristock5, Luisa Molino6 1 Concordia University, Montreal, Canada University of British Columbia, Vancouver, Canada 3 Ryerson University, Toronto, Canada 4 Dalhousie University, Halifax, Canada 5 University of Manitoba, Winnipeg, Canada 6 Concordia University, Montreal, Canada 2 2:00-2:30 Inventing neologisms regarding breast cancer in South Korea Miwon Seo Ecole des Hautes Etudes en Sciences Sociales (EHESS)- Centre d'Analyse et d'Intervention Sociologique (Cadis) - Centre de Recherche sur la Corée (CRC), Paris, France 2:30-3:00 Reflections on risk: consultation experience of women diagnosed with breast cancer risk Sarah Blakeslee Berlin School of Public Health, Charité Universitätsmedizin, Berlin, Germany 3:00-3:30 Coffee Break 3:30-4:30 Final Discussion and Closing of Conference Chair: Denny Chakkalakal, Jennifer Kennedy, Martin Schultze & Wiebke Stritter Berlin School of Public Health, Charité, Berlin, Germany 5
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